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| | Joined: Feb 2011 Posts: 82 "OCF Down Under" Supporting Member (50+ posts) | | "OCF Down Under" Supporting Member (50+ posts)
Joined: Feb 2011 Posts: 82 | Hey!
Just wondering what everyone would recommend? I’ve been using gc dry mouth gel for years. Works fairly well but I still wake up multiple times a night with dry mouth. I tried biotene gel many years ago, but preferred the gc gel at the time. Coming up to 10 years post-treatment. Any advice would be greatly appreciated.
Thanks!
21 @ diagnosis. Tongue cancer(SCC) non smoker,HPV negative. 11 hour Surgery (30+ glands removed-left side neck dissection, 'jaw split' for 'access'-left side tongue dissection, graft & artery from left thigh for re-construction of tongue.44 rad t'ments.4x cisplatin.no peg.Clear PET scan 12/5/2011!
| | | | | Joined: Sep 2019 Posts: 120 Likes: 15 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Sep 2019 Posts: 120 Likes: 15 | Hey Dave ,I was prescribed mouth spray from my dentist its called mouth kote its all natural it really helps me | | | | | Joined: Feb 2011 Posts: 82 "OCF Down Under" Supporting Member (50+ posts) | | "OCF Down Under" Supporting Member (50+ posts)
Joined: Feb 2011 Posts: 82 | Thank you for the info!
I’ll take a look into it.
Appreciate it, thanks.
21 @ diagnosis. Tongue cancer(SCC) non smoker,HPV negative. 11 hour Surgery (30+ glands removed-left side neck dissection, 'jaw split' for 'access'-left side tongue dissection, graft & artery from left thigh for re-construction of tongue.44 rad t'ments.4x cisplatin.no peg.Clear PET scan 12/5/2011!
| | | | | Joined: Aug 2019 Posts: 22 Likes: 2 Member | | Member
Joined: Aug 2019 Posts: 22 Likes: 2 | I use xylimelts. They're tablets that stick to your gum and slowly release moisture at night. They do help. | | | | | Joined: Feb 2011 Posts: 82 "OCF Down Under" Supporting Member (50+ posts) | | "OCF Down Under" Supporting Member (50+ posts)
Joined: Feb 2011 Posts: 82 | Thank you I’ll have a look at those too. Appreciate it!
21 @ diagnosis. Tongue cancer(SCC) non smoker,HPV negative. 11 hour Surgery (30+ glands removed-left side neck dissection, 'jaw split' for 'access'-left side tongue dissection, graft & artery from left thigh for re-construction of tongue.44 rad t'ments.4x cisplatin.no peg.Clear PET scan 12/5/2011!
| | | | | Joined: Aug 2020 Posts: 10 Member | | Member
Joined: Aug 2020 Posts: 10 | My dentist gave me Moisyn. Comes in a sprat or rinse. I like it. For me it lasts several hours
Lip Cancer
Stage 3
T2 N0
Lip resection, reconstruction
Modified Neck Dissection
30 radiation treatments (last day 9/11)
Starting Physical Therapy on my neck
Barium Swallow Test after Thanksgiving
1st post op PET scan scheduled for beginning of December
Going thru it physically alone during the pandemic 2020
| | | | | Joined: Feb 2015 Posts: 134 Likes: 7 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Feb 2015 Posts: 134 Likes: 7 | I use ACT, not a gel but a tablet which works for hours.
SCC stage 1 Nov. '03,
SCC stage 2 (clear mrg, no rad, no chemo) RND, Feb. '15
SCC stage 1, lower gum Mar '23, all lower gums and teeth removed
TLC356
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