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#200543 11-15-2020 02:53 PM
Joined: Nov 2020
Posts: 2
Phoebe Offline OP
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Hello-
My sister just finished final week of radiation for HPV + cancer on her tonsil and a few lymph nodes. Her mouth is burning from things like cool carrot soup, cool asparagus soup and chocolate pudding. Why are these bothering her and what can she do? She had success w tapioca pudding and Soylent...

Phoebe #200544 11-16-2020 07:31 AM
Joined: Oct 2012
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Hi Phoebe, welcome to the forum. I’m sorry your sister has to have radiation. Problems with eating are very common for patients who have undergone rads. If you can imagine what a really, really bad sunburn does to your skin, then you will understand why your sister is having problems eating. It’s likely that a patient will have to keep to eating a few items for a while as her mouth heals. She can try different foods from time to time to see if she can tolerate more food as time goes by. What is important is for her to be patient and to make sure that even with mouth pain, she is taking in enough calories and hydration every day. For this reason, many patients use supplements like Ensure or Boost as they know for sure how many calories there are in a bottle. It is also helpful if your sister can access the service of a dietitian who will keep an eye on her weight, calorie-intake and give her suggestions for what foods to eat.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
Phoebe #200555 11-19-2020 09:28 PM
Joined: Aug 2020
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Hello Phoebe, your sister might want to ask her Rad On Dr about “magic mouthwash” it has lidocaine in it to help numb the mouth to help with eating. Some Drs call it Radiomix. It helped me a great deal.


Lip Cancer
Stage 3
T2 N0
Lip resection, reconstruction
Modified Neck Dissection
30 radiation treatments (last day 9/11)
Starting Physical Therapy on my neck
Barium Swallow Test after Thanksgiving
1st post op PET scan scheduled for beginning of December
Going thru it physically alone during the pandemic 2020

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