Previous Thread
Next Thread
Print Thread
Trismus Treatment? #200246
07-12-2020 06:38 AM
07-12-2020 06:38 AM
Joined: Sep 2019
Posts: 2
B
Becky L Offline OP
Member
Becky L  Offline OP
Member
B

Joined: Sep 2019
Posts: 2
My husband has severe trismus after having 100+ Gys over the last 18 months. It seems to be getting worse and he can no longer fit the mouth stretching device into his mouth (it is an Ora Stretch Press, and seems similar to a Therabite). It’s impacting his ability to eat and speak.

1. Does anyone have suggestions for what to do when the mouth stretching device won’t fit? I think I remember reading something about using tongue depressors, but can’t remember the details on how to use them. Is there anything else that we should consider besides tongue depressors?

2. Have you found a medical professional particularly helpful in addressing trismus? If so, what type?

Thank you!
Becky

Re: Trismus Treatment? [Re: Becky L] #200253
07-13-2020 10:47 AM
07-13-2020 10:47 AM
Joined: Jun 2019
Posts: 169
D
Dizz_zzey Offline
"OCF across the pond"
Dizz_zzey  Offline
"OCF across the pond"
Senior Member (100+ posts)
D

Joined: Jun 2019
Posts: 169
When my jaw started to tighten up I would massage the sides of my face from the middle of my lower jaw up the side of my face, both sides. I would do it in the shower, as it was warm and I could use my face wash as a lubricant. I would then do it again when putting on my moisturiser. So twice a day. It helped.


F 39 x-smoker, rare drink
T4aN1/N2bM0 SCC L lateral tongue &10mm into R
Diagnosed May 20th '19
Pembro trial 5th July '19 2 doses pre-surg 15 post surg
R.I.G fitted 9th Aug '19
Surgery 13th Aug '19 glossectomy neck dissection RFFR
33 doses RT 17th Sept '19
2x cispltin
Re: Trismus Treatment? [Re: Dizz_zzey] #200277
07-23-2020 03:15 PM
07-23-2020 03:15 PM
Joined: Aug 2019
Posts: 55
B
Barry Toronto Offline
Supporting Member (50+ posts)
Barry Toronto  Offline
Supporting Member (50+ posts)
B

Joined: Aug 2019
Posts: 55
i used tongue depressors. I inserted as many depressors (flat side up) as i could between front teeth and held them in place for 30 seconds. Add more depressors over time as muscles loosened. When i started i could only fit 8 tongue depressors- gradually built it up to 26. I would also massage jaw muscles while the depressors held my mouth open.


Preliminary diagnosis of SqCC at base of tongue August 2, 2019.
Biopsy surgery on August 15
Confirmed sqcc from biopsy Aug 20 - hpv type 16
33 radiation treatments ended October 25, 2019.
3 (large dose) cisplatin treatments.
Re: Trismus Treatment? [Re: Barry Toronto] #200278
07-24-2020 07:20 AM
07-24-2020 07:20 AM
Joined: Oct 2012
Posts: 1,212
Toronto, Canada
G
gmcraft Offline
Assistant Admin
gmcraft  Offline
Assistant Admin
Patient Advocate (1000+ posts)
G

Joined: Oct 2012
Posts: 1,212
Toronto, Canada
That’s impressive, from 8 to over 20. It’s important to work on the muscles ASAP if not they will become so hard that you won’t be able to stretch them. Good job, Barry!


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.

Moderated by  Eva Grayzel 

Support OCF


Help OCF

Shop Amazon and Help OCF

Top Posters(All Time)
ChristineB 10,485
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,744
Newest Members
Lisa D, meganstar, Bananabach, WW1978, Andy Columbia Md
12469 Registered Users
Forum Statistics
Forums23
Topics17,809
Posts195,253
Members12,469
Most Online458
Jan 16th, 2020
Powered by UBB.threads™ PHP Forum Software 7.7.1