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last treatment and a question #200222
06-23-2020 05:58 PM
06-23-2020 05:58 PM
Joined: Aug 2018
Posts: 318
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ConnieT Offline OP
Platinum Member (300+ posts)
ConnieT  Offline OP
Platinum Member (300+ posts)
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Joined: Aug 2018
Posts: 318
tomorrow is his last 8 hour drive for proton therapy.

i asked when they do a scan to see how it worked. he said 3 months. is that normal? I don't think many on here have a lot of experience with proton therapy but taking a chance.

yeah, he's still drinking. Almost empty case of beer in the garage fridge he thinks I never look in.


Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy
Re: last treatment and a question [Re: ConnieT] #200223
06-24-2020 02:16 PM
06-24-2020 02:16 PM
Joined: Jul 2012
Posts: 3,267
NYC
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PaulB Offline
Patient Advocate (old timer, 2000 posts)
PaulB  Offline
Patient Advocate (old timer, 2000 posts)
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Joined: Jul 2012
Posts: 3,267
NYC
Connie,

Wow, his treatment time went fast, at least for me! The post treatment scans are the same as for IMRT radiation, usually after 3 months. If there is any suspicion they may do it sooner, which I believe is after 6 weeks that a certain percent that it would be accurate, so the longer one waits it would be more accurate. Of course, if suspicious, the sooner the better, but most post treatment scans are negative. Even though I had a number of recurrences (7) all my first post treatment scans were negative.

Good luck with everything!


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Re: last treatment and a question [Re: PaulB] #200224
06-25-2020 09:49 AM
06-25-2020 09:49 AM
Joined: Aug 2018
Posts: 318
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ConnieT Offline OP
Platinum Member (300+ posts)
ConnieT  Offline OP
Platinum Member (300+ posts)
C

Joined: Aug 2018
Posts: 318
yes Paul. 5 treatments. Monday, Wednesday, Friday last week and Monday, Wednesday this week.

thank you for the information!


Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy

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