I had a partial glossectomy mid april for cancer. I expected surgical pain, but not the ungodly nerve pain. I am taking gabapentin which has helped tremendously, but it still gets almost unbearable at times. Hot/cold affect it, i have tried everything I can think of, does anyone have any good ideas? Narcotic medications are completely ineffective. I feel like a big baby, but sometimes its just awful.

Welcome to OCF! Im sorry to read about your post surgical struggles. Mouth pain is the worst!!! The medication that helps the nerve pain you described, is exactly what you are already taking... liquid Neurontin AKA Gabapentin. Being in extreme pain does NOT help patients, it is actually detrimental to promoting healing. I suggest going back to your doc and discussing in detail how severe your pain is. Hopefully they will have some different options or maybe refer you to a pain management specialist doctor. Hopefully as you continue to recover from the surgery, your pain will lessen as the inflammation subsides.

Best wishes with everything!!!

I continue to suffer from nerve pain, but not in my mouth. The nerve pain I have is from my neck dissection and it's in my neck and ear. I was on gabapentin for a month, and it reduced the pain but did not completely eliminate it. I use RSO, which helps me to cope with the pain (and doesn't cause constipation like opiates).

Did your tongue pain get better? I am going through the same thing at the moment?

Did your pain get better? I am going through the same thing right now