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#200129 05-13-2020 09:13 AM
Joined: Aug 2018
Posts: 345
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Platinum Member (300+ posts)
Platinum Member (300+ posts)

Joined: Aug 2018
Posts: 345
Likes: 9
He had a PET scan on Monday. He also started his 3rd 5 day round of chemo on a pump he carries around. No real side effects. So different from the high powered chemo he had the first time around.
He is on Keytruda which might mean something to some of you.

The tumor was 4 cm and is now 2.5 cm. They might do a 4th round before going to Mayo for proton radiation therapy.

He still hasn't really looked for a job after 6 months. He could totally work through these treatments....he said he actually feels better because the pain is gone.

just wanted to share how this has been going.


Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy
9/21/2020 cancer free
ConnieT #200130 05-13-2020 12:51 PM
Joined: Oct 2012
Posts: 1,275
Likes: 8
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Patient Advocate (1000+ posts)
Assistant Admin
Patient Advocate (1000+ posts)

Joined: Oct 2012
Posts: 1,275
Likes: 8
As far as I know, Keytruda is an immunotherapy drug. That would explain why he doesn’t show a lot of side effects like when he was on chemo last. The drug works by getting the body’s own immunity system to recognize the cancer and destroy it. If the cancer is shrinking, maybe he’s responding to the treatment.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
gmcraft #200131 05-13-2020 03:25 PM
Joined: Aug 2018
Posts: 345
Likes: 9
Platinum Member (300+ posts)
Platinum Member (300+ posts)

Joined: Aug 2018
Posts: 345
Likes: 9
thanks for the explanation. I haven't done much reading about the Keytruda, I just hear him mention it to people.


Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy
9/21/2020 cancer free

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