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my post got removed. #200121
05-12-2020 07:29 AM
05-12-2020 07:29 AM
Joined: Aug 2018
Posts: 330
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ConnieT Offline OP
Platinum Member (300+ posts)
ConnieT  Offline OP
Platinum Member (300+ posts)
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Joined: Aug 2018
Posts: 330
I just posted an update yesterday of how treatment is going. Not sure what I did wrong.

Last edited by ConnieT; 05-12-2020 10:54 AM.

Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy
9/21/2020 cancer free
Re: my post got removed. [Re: ConnieT] #200122
05-12-2020 03:06 PM
05-12-2020 03:06 PM
Joined: Jun 2007
Posts: 10,502
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ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Joined: Jun 2007
Posts: 10,502
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Hi Connie! I took a look at the very limited info I have on your posts and their histories, I only found 2 edits both done today by you. Im sorry but there isnt anything else available to check. Notice the names of todays posts are similar yet they're slightly different .... was your edit changing the name of the post titled Guess my post removed.? There are no other posts you made during this month (May). When I check your post history the last post I see you created and posted was on 04-24-2020 @ 04:36 PM, it was titled 4/24/2020.. Could you have been thinking of something you wrote as a PM to someone? Sometimes in my rush to juggle too many things at once, or multi-task (something I am not able to do anymore) sometimes I will hit the wrong thing and end up deleting something I spent considerable time and effort writing. Its also possible the preview button was hit instead of the post button, never know and that sort of thing is way beyond what basic functions we see. Im very sorry, but thats all the info I have. Theres nothing else available to me or anyone else who has access to everything behind the scenes.


5.12.20 @ 11:29 AM titled...... Guess my post removed.

5.12.20 @ 2:54PM titled .......... my post got removed.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Re: my post got removed. [Re: ChristineB] #200125
05-13-2020 03:53 AM
05-13-2020 03:53 AM
Joined: Jun 2007
Posts: 10,502
PA
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ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Joined: Jun 2007
Posts: 10,502
PA
Hi Connie!!! I was running into a few glitches myself yesterday. I thought it was just me and my high-tech challenges but after talking with our IT specialist, he let me know everything's ok.

There is a system upgrade going on so it can take a while for something to show or to pop back up.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Re: my post got removed. [Re: ChristineB] #200128
05-13-2020 09:10 AM
05-13-2020 09:10 AM
Joined: Aug 2018
Posts: 330
C
ConnieT Offline OP
Platinum Member (300+ posts)
ConnieT  Offline OP
Platinum Member (300+ posts)
C

Joined: Aug 2018
Posts: 330
thank you for responding! I don't like breaking rules and I'm sure I broke none. It was just an update that said 5/11/2020. it was there for a day and then poof! Maybe I should just repost it today and see what happens.


Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy
9/21/2020 cancer free
Re: my post got removed. [Re: ConnieT] #200137
05-16-2020 02:57 AM
05-16-2020 02:57 AM
Joined: Jun 2007
Posts: 10,502
PA
C
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
C

Joined: Jun 2007
Posts: 10,502
PA
Dont worry Connie!!! I know you well enough to know you would not ever break any of OCFs rules. I was hoping your post would somehow magically reappear, but its still not back. Im thinking the longer its gone, the less chance there is of it returning. Feel free to recreate your post to keep everyone who is following along with your husbands story up to date.

Sorry for the inconvenience!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile

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