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#200030 04-08-2020 01:05 PM
Joined: Jan 2020
Posts: 50
Kevster Offline OP
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Jan 2020
Posts: 50
Hi just an update on my end. Two weeks into treatment things were going pretty well. Few side effects except less saliva. Of course last night thrush erupted and now I have a side effect that I was assured at the start my tongue/neck radiation would not appear - painful swallowing. It hurts so much to swollow that it reminds me of the weeks after partial glossectomy. I nearly broke down this morning. I had braced myself for ulcers, lack of taste, sensitivity, lack of saliva etc, but I never thought I would have difficulty swallowing. It’s driving me close to the edge emotionally. I’m so angry about it, anger usually being a sign of depression for me. Doc says it should get better in a couple of days after starting the antifungal mouthwash but nurse said a week. Starting pain meds today though not looking forward to being loopy and severely constipated.

Last edited by Kevster; 04-08-2020 01:11 PM.

Stage 3 cancer of right side of tongue
Tumor: t2.
Lymph nose spread
Partial glossectomy and neck dissection (2/12/20)
Never smoker
Completed six weeks of radiation on 5/6/20
Joined: Jun 2019
Posts: 237
"OCF across the pond"
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"OCF across the pond"
Gold Member (200+ posts)

Joined: Jun 2019
Posts: 237
I had thrush too, even though I kept (and still do) my mouth so clean. OC treatment and recovery is just the gift that keeps on giving. It will get better, I promise


F 39 x-smoker no alcohol
05/20/19 T4aN1/N2bM0 SCC a whopper of a tumour at 8cm long & 4cm wide
Pembro pre & post surgery
RIG
Glossectomy ND RFFR 08/13/19
RT x33
2x cispltin
So far, no evidence of disease
Now an author of a recipe book for mouth cancer patients
Joined: Dec 2019
Posts: 38
Contributing Member (25+ posts)
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Contributing Member (25+ posts)

Joined: Dec 2019
Posts: 38
Hopefully with treatment this had gotten better? My mouth was probably more painful with thrush than at the end of my treatment. Stupid yeast!

Joined: Jan 2020
Posts: 50
Kevster Offline OP
Supporting Member (50+ posts)
OP Offline
Supporting Member (50+ posts)

Joined: Jan 2020
Posts: 50
Thanks for the reply. Still have thrush but that was not what was causing the excruciating pain every time I swallowed. The back part my tongue has swollen so much that I was having difficulty even swallowing small pills - they could barely get through. Each time I swallowed the top of my tongue basically scraped the top of my mouth. Doctor has given me liquid steroid wash to shrink swelling. Has helped a bit. Doc thinks it might have been an allergic reaction to Norco painkiller. I’m left hoping that the mucositis will become the worst of my problems. Anything but the swelling!


Stage 3 cancer of right side of tongue
Tumor: t2.
Lymph nose spread
Partial glossectomy and neck dissection (2/12/20)
Never smoker
Completed six weeks of radiation on 5/6/20
Joined: Jul 2012
Posts: 3,267
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
I’m sorry for you troubles! Thrush is very common in oral cancer patients, and can be painful. If left untreated, it can go to the throat, stomach and other areas, where it’s considered disseminated candiasis and dangerous! It’s usually treated with antifungal medications like clotromizole, flucomizole (spell) and other medications. Impeccable oral care is also important.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Jan 2020
Posts: 50
Kevster Offline OP
Supporting Member (50+ posts)
OP Offline
Supporting Member (50+ posts)

Joined: Jan 2020
Posts: 50
Halfway done. The oxy is helping with the painful mucositis, though there are still unfortunately sores on the roof of
my mouth - way in the back - that are causing discomfort as every time i swallow, the rear of my tongue rubs against them. There is an sore near the tip of my tongue which is causing trouble. Luckily my sense of taste isn’t bad - can still taste chocolate and vanilla. I guzzle three shakes a day and have maintained my weight. I’m tired a lot but for some reason i find it easier to sleep during daytime than I do at night, which is frustrating. I think my face is swelling because the radiation mask is becoming very tight. Overall this could be a lot worse, so I should be thankful for that - but i don’t know what the next three weeks will bring. Will keep you updated. Hope everyone is staying safe (and sane) during this virus craziness.

Last edited by Kevster; 04-20-2020 01:17 AM.

Stage 3 cancer of right side of tongue
Tumor: t2.
Lymph nose spread
Partial glossectomy and neck dissection (2/12/20)
Never smoker
Completed six weeks of radiation on 5/6/20

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