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chemo and immunotherapy #199969
03-23-2020 12:49 PM
03-23-2020 12:49 PM
Joined: Aug 2018
Posts: 318
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ConnieT Offline OP
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ConnieT  Offline OP
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Joined: Aug 2018
Posts: 318
next monday, a port will be inserted so that he can administer the chemo at home for 5 days a week. he did not come home from this appointment feeling positive..of course, he can't stand the doc he had to go back to so not surprising. With all this crazy stuff going on, life is much more difficult to say the least. I will drop him off to get the port and wait at home to come pick him up. He doesn't want me in the hospital which is fine as I do not want to be a carrier of the virus. So far, we have had zero positive for the virus in our county. I have only been out 1 time in 11 days. It took him awhile to take it seriously but he finally stopped going to the store for food every day.

Thankful the oncologist comes to our town once a week as he is located in an area with many who are ill with covid 19.


,,,,,and life goes on.


Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy
Re: chemo and immunotherapy [Re: ConnieT] #200008
04-01-2020 01:39 PM
04-01-2020 01:39 PM
Joined: Aug 2018
Posts: 318
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ConnieT Offline OP
Platinum Member (300+ posts)
ConnieT  Offline OP
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Joined: Aug 2018
Posts: 318
first day...thought I was going punch his lights out! he was hyperactive and bouncing off the walls. he said he slept for the first time in a long time so the chemo must be working.

second day....started out hyper but seems to be sleeping a lot more. Hyper sensitive to smells. Says the Lysol wipes are so strong and making him sick. I don't know if that's a chemo thing or not. I can't smell them when I walk into the room.

He returns the backpack/machine on Friday. Then a 2 week vacation before another 5 day round of Keytruda and whatever chemo they are giving him.

I forget the rest of the world is hunkered down too. Guess I"m not missing out on too much while being hyper vigilant about germs.


Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy
Re: chemo and immunotherapy [Re: ConnieT] #200009
04-02-2020 06:28 AM
04-02-2020 06:28 AM
Joined: Oct 2012
Posts: 1,214
Toronto, Canada
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gmcraft Offline
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gmcraft  Offline
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Joined: Oct 2012
Posts: 1,214
Toronto, Canada
When John had chemo, they gave him Benadryl prior, to stave off any allergies. That might have been the reason for your hubby’s very good sleep.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
Re: chemo and immunotherapy [Re: gmcraft] #200010
04-02-2020 07:27 AM
04-02-2020 07:27 AM
Joined: Aug 2018
Posts: 318
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ConnieT Offline OP
Platinum Member (300+ posts)
ConnieT  Offline OP
Platinum Member (300+ posts)
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Joined: Aug 2018
Posts: 318
that's possible. He was so glad to not have all the pain in his face which has kept him from sleeping for a couple of months now. But today...it's 9:30 and he hasn't even gotten up to take his dog out yet. I think the tiredness of the chemo and/or Keytruda has kicked in. He went from an 11 in energy on Tuesday and started really slowing down yesterday and seems to be out of it today.


Last edited by ConnieT; 04-02-2020 07:28 AM.

Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy

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