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Lost to oral cancer #199675
01-13-2020 01:10 AM
01-13-2020 01:10 AM
Joined: Sep 2018
Posts: 9
Belle Haven, Virginia
H
Hopeful55 Offline OP
Member
Hopeful55  Offline OP
Member
H

Joined: Sep 2018
Posts: 9
Belle Haven, Virginia
One week ago Richard was taken from this disease.


Diane Walters Van Dyke
Re: Lost to oral cancer [Re: Hopeful55] #199676
01-13-2020 07:44 AM
01-13-2020 07:44 AM
Joined: Aug 2019
Posts: 56
B
Barry Toronto Offline
Supporting Member (50+ posts)
Barry Toronto  Offline
Supporting Member (50+ posts)
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Joined: Aug 2019
Posts: 56
Very sorry for your loss.


Preliminary diagnosis of SqCC at base of tongue August 2, 2019.
Biopsy surgery on August 15
Confirmed sqcc from biopsy Aug 20 - hpv type 16
33 radiation treatments ended October 25, 2019.
3 (large dose) cisplatin treatments.
Re: Lost to oral cancer [Re: Hopeful55] #199677
01-13-2020 08:29 AM
01-13-2020 08:29 AM
Joined: Oct 2012
Posts: 1,221
Toronto, Canada
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gmcraft Offline
Assistant Admin
gmcraft  Offline
Assistant Admin
Patient Advocate (1000+ posts)
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Joined: Oct 2012
Posts: 1,221
Toronto, Canada
Dear Hopeful,

I’m so sorry for your loss. Richard is in a happier place now and all the pain and suffering is over for him.

Please take good care of yourself. I lost my husband to oral cancer too, and when he passed, there were a couple of years when I felt I had PTSD. The caregiver’s role is not at all easy. I’m keeping you in my thoughts.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
Re: Lost to oral cancer [Re: Hopeful55] #199682
01-14-2020 12:10 PM
01-14-2020 12:10 PM
Joined: Jul 2012
Posts: 3,267
NYC
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PaulB Offline
Patient Advocate (old timer, 2000 posts)
PaulB  Offline
Patient Advocate (old timer, 2000 posts)
P

Joined: Jul 2012
Posts: 3,267
NYC
Hopeful55,

I’m sorry for your loss! It’s so sad!


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Re: Lost to oral cancer [Re: Hopeful55] #199690
01-15-2020 06:38 PM
01-15-2020 06:38 PM
Joined: Jun 2019
Posts: 59
San Antonio, Texas
M
Mokie Online
Supporting Member (50+ posts)
Mokie  Online
Supporting Member (50+ posts)
M

Joined: Jun 2019
Posts: 59
San Antonio, Texas
My condolences. He was so fortunate to have you in his life
over the years to support him not once, but twice through
such an awful ordeal. Be kind to yourself now and take care. (Hugs)


SSC Lt sublingual tongue; Age 62
Positive biopsy 20June2019
Staging done 2 Jul : Stage 1
Quit smoking 15 years ago; not a drinker; no HPV
Pet/ CT 6Jul2019 : Negative. Not even the Lt tongue lit up.
Partial Glossectomy 22Jul2019
Re: Lost to oral cancer [Re: Hopeful55] #199707
01-21-2020 07:18 AM
01-21-2020 07:18 AM
Joined: Oct 2019
Posts: 25
Abington, PA
E
EileenL Offline
Contributing Member (25+ posts)
EileenL  Offline
Contributing Member (25+ posts)
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Joined: Oct 2019
Posts: 25
Abington, PA
I am so sorry for your loss.


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