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#199675 01-13-2020 01:10 AM
Joined: Sep 2018
Posts: 9
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Joined: Sep 2018
Posts: 9
One week ago Richard was taken from this disease.


Diane Walters Van Dyke
Joined: Aug 2019
Posts: 57
Supporting Member (50+ posts)
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Joined: Aug 2019
Posts: 57
Very sorry for your loss.


Preliminary diagnosis of SqCC at base of tongue August 2, 2019.
Biopsy surgery on August 15
Confirmed sqcc from biopsy Aug 20 - hpv type 16
33 radiation treatments ended October 25, 2019.
3 (large dose) cisplatin treatments.
Joined: Oct 2012
Posts: 1,275
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Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Oct 2012
Posts: 1,275
Likes: 7
Dear Hopeful,

I’m so sorry for your loss. Richard is in a happier place now and all the pain and suffering is over for him.

Please take good care of yourself. I lost my husband to oral cancer too, and when he passed, there were a couple of years when I felt I had PTSD. The caregiver’s role is not at all easy. I’m keeping you in my thoughts.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
Joined: Jul 2012
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Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
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Hopeful55,

I’m sorry for your loss! It’s so sad!


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Jun 2019
Posts: 62
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Jun 2019
Posts: 62
My condolences. He was so fortunate to have you in his life
over the years to support him not once, but twice through
such an awful ordeal. Be kind to yourself now and take care. (Hugs)


SSC Lt sublingual tongue; Age 62
Positive biopsy 20June2019
Staging done 2 Jul : Stage 1
Quit smoking 15 years ago; not a drinker; no HPV
Pet/ CT 6Jul2019 : Negative. Not even the Lt tongue lit up.
Partial Glossectomy 22Jul2019
Joined: Oct 2019
Posts: 27
Likes: 1
Contributing Member (25+ posts)
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Contributing Member (25+ posts)

Joined: Oct 2019
Posts: 27
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I am so sorry for your loss.


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