Previous Thread
Next Thread
Print Thread
#199588 12-10-2019 08:23 PM
Joined: Jan 2019
Posts: 22
Member
OP Offline
Member

Joined: Jan 2019
Posts: 22
My husband will be starting 6 weeks of radiation along with weekly chemo treatments after the new year. We are lucky to have housing near the hospital but it is a one-room apartment with a tiny kitchen. I would appreciate any advice for helping us to get through this. He is extremely worried about nausea and vomiting, and doesn’t like to take narcotics. The hospital has already talked to us about how important nutrition and hydration are but I have no idea what to feed him or what he might be able to tolerate.


Husband DX’d 1/17/19 with SCC on lower left gum
Mandibulectomy 2/28/19
Recurrence 11/19
Barbara5524 #199590 12-11-2019 11:22 AM
Joined: Oct 2012
Posts: 1,251
Likes: 2
Assistant Admin
Patient Advocate (1000+ posts)
Online
Assistant Admin
Patient Advocate (1000+ posts)

Joined: Oct 2012
Posts: 1,251
Likes: 2
The thing about nausea and vomiting after chemo is the patient should take the anti-emetic early and not to wait till the nausea has started before taking the medication. I have always been told to get ahead of the curve. The anti-emetic is not a narcotic.

Your husband will probably be very tired after the first week of radiation. There won’t be much he will like to do. I set up a “station” for my husband in front of the TV with his water, cream for his skin and a box of Kleenex close by so he wouldn’t have to move around too much because he developed deep vein thrombosis in both legs.

It is likely the hospital will suggest using Ensure or a similar supplement while he is in treatment and, honestly, he probably would not want to have “real” food after a while because of mouth sours and taste changes. On that score you might not need to worry. When you are cooking for yourself, you may consider keeping a kitchen window open so that the taste of cooking won’t upset him too much as it’s a one-room apartment. Do you have access to a dietitian at the hospital/ that’s a good person to consult with regards to food and meals.

I kept a record of what my husband are at every meal and the calories so that I would have a handle on whether he’s taking in enough.

Come back often and ask whatever question you may have. This is a friendly community. The members are always ready to help.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
gmcraft #199595 12-11-2019 08:29 PM
Joined: Jan 2019
Posts: 22
Member
OP Offline
Member

Joined: Jan 2019
Posts: 22
Thank you so much! We are supposed to meet with the dietician once treatment has started.


Husband DX’d 1/17/19 with SCC on lower left gum
Mandibulectomy 2/28/19
Recurrence 11/19

Link Copied to Clipboard
Top Posters
ChristineB 10,502
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,751
Newest Members
rkinjo, Garvin, KathDE, Darcy67, MJK
12,622 Registered Users
Forum Statistics
Forums23
Topics17,903
Posts195,722
Members12,622
Most Online458
Jan 16th, 2020
OCF Awards

Powered by UBB.threads™ PHP Forum Software 7.7.5