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Radiation and chemo for recurrence #199552
12-01-2019 11:09 PM
12-01-2019 11:09 PM
Joined: Jan 2019
Posts: 22
Washington, DC
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Barbara5524 Offline OP
Member
Barbara5524  Offline OP
Member
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Joined: Jan 2019
Posts: 22
Washington, DC
My husband was diagnosed with SCC on his lower left gum last January and underwent a mandibulectomy with free flap construction from his right leg. His margins were clean, his lymph nodes were clear and the doctors did not recommend any further treatment.

Two weeks ago, he went for follow-up scans and a tumor was found in his neck. They operated four days later and are now recommending a six week course of radiation with chemo. They want him to heal for six weeks so treatment will probably start early to mid-January of 2020.

On the advice of someone from this forum I asked the surgeon if my husband should give up drinking. The doctor was so adamant that he should, that I was surprised that I was the one who brought it up. My husband gave up drinking that day and he never smoked so that is not an issue.

I do not have the details on the proposed treatment yet. I am wondering if anyone has useful questions for me to ask the doctors about getting through these treatments, or advice for me to help him through it. He lost 20 pounds after the first surgery and does not want to gain them back, so I am afraid he will have trouble keeping his calories up, especially if he doesn’t feel like eating.

The other decision we are facing is whether to stay at the top CCC we are currently at or switch to another CCC which is close to our home. We have been very satisfied with the care he has gotten, and the surgeon also mentioned that he would try to get my husband into a clinical trial for immunotherapy (if one is available.). My husband is leaning toward doing the treatments close to home. I am not sure if we should switch at this point.

This recurrence has really shocked us -far more than the original diagnosis.


Husband DX’d 1/17/19 with SCC on lower left gum
Mandibulectomy 2/28/19
Recurrence 11/19
Re: Radiation and chemo for recurrence [Re: Barbara5524] #199759
02-04-2020 08:45 AM
02-04-2020 08:45 AM
Joined: Jan 2020
Posts: 43
Los Angeles, ca
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Kevster Offline
Contributing Member (25+ posts)
Kevster  Offline
Contributing Member (25+ posts)
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Joined: Jan 2020
Posts: 43
Los Angeles, ca
Can’t give you much advice on most of your topics except my own personal reaction to the idea of switching CCC. I’m newly diagnosed with right lateral tongue going in for surgery next week. I also had a distance issue (but it was relatively minor)) I chose the further away hospital because I liked doctor better. What I told myself was “this is my life we are taking about. I shouldn’t be concerned about the drive as it’s not a shopping trip.” That said my commute to the other hospital is only an hour so I’m lucky. This is just my perspective. Switching may be the right thing for you so don’t let me bias you.


Stage 3 cancer of right side of tongue
Tumor: t2.
Lymph nose spread
Partial glossectomy and neck dissection (2/12/20)
Never smoker
Scheduled for six weeks of radiation starting 3/25/20

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