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#199495 11-22-2019 07:56 AM
Joined: Oct 2019
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EileenL Offline OP
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Anyone ever experience extreme tightness in the neck after treatment? Bob was doing so well but in the past couple weeks, he's complained more and more about how tight his neck is. You can even see the tendons standing out. He says it's just horrible and I don't know what I can do for him or even which doctor to ask. Any ideas?

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Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

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Sounds like fibrosis? See his ENT and Radiation Oncologists who can better judge the situation. They may send to a SLP to do mouth and neck exercises, do testing.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Oct 2019
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EileenL Offline OP
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Joined: Oct 2019
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Thanks much, Paul!


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