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| | Joined: Oct 2019 Posts: 3 Member | OP  Member
Joined: Oct 2019 Posts: 3 | It seems that I have become a poster boy for oral cancer having now been in the OR at Moffitt Cancer Center 6 times. The most recent was for a mandibulectormy with fibula free flap which has turned out to be stage 4 due to cancer found in the excised lower right jaw post op. The most amazing thing to me is I have never been a heavy smoker drinker or have HPV but here I am fighting this dreaded disease again. Anyway, off to post a couple of questions. | | | | | Joined: Jun 2019 Posts: 244 Likes: 2 "OCF across the pond" Gold Member (200+ posts) | | "OCF across the pond" Gold Member (200+ posts)
Joined: Jun 2019 Posts: 244 Likes: 2 |
Ah mate, I'm so sorry to hear of your diagnosis. Welcome to the family though.
F 39 x-smoker no alcohol
05/20/19 T4aN1/N2bM0 SCC a whopper of a tumour at 8cm long & 4cm wide
Pembro pre & post surgery
RIG
Glossectomy ND RFFR 08/13/19
RT x33
2x cispltin
So far, no evidence of disease
Now an author of a recipe book for mouth cancer patients
| | | | | Joined: Feb 2015 Posts: 134 Likes: 7 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Feb 2015 Posts: 134 Likes: 7 | Sandy: I've been told by cancer center docs that those of us non- HPV patients have a cell weakness that when combined with smoking in youth and even light alcohol use in later years activates our cancer. Light alcohol use for equals disaster.
SCC stage 1 Nov. '03,
SCC stage 2 (clear mrg, no rad, no chemo) RND, Feb. '15
SCC stage 1, lower gum Mar '23, all lower gums and teeth removed
TLC356
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