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#199146 09-28-2019 04:10 PM
Joined: Sep 2019
Posts: 23
Member
Member

Joined: Sep 2019
Posts: 23
Hello—I am caregiver for my husband who is 7 weeks out from the end of chemo & radiation. I am so grateful to have found this forum as it assures both of us that we’re not experiencing this alone.


Spouse of patient 7 weeks post radiation as of 9/30/19
ArdenDD #199147 09-29-2019 06:53 AM
Joined: Oct 2012
Posts: 1,275
Likes: 8
Assistant Admin
Patient Advocate (1000+ posts)
Assistant Admin
Patient Advocate (1000+ posts)

Joined: Oct 2012
Posts: 1,275
Likes: 8
Welcome to the forum. I am sorry you have to join our group of friends but hopefully you’ll find the support that you need. There are a lot of knowledgeable members here although none of us is a medical professional. We are caregivers and patients who help by sharing our experience and what we have learned from it. You are certainly not alone on this cancer journey.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
ArdenDD #199149 09-29-2019 08:46 AM
Joined: Jul 2012
Posts: 3,267
Likes: 4
Patient Advocate (old timer, 2000 posts)
Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
Likes: 4
Welcome ArdenDD!

Gmcraft said it right! If there is anything we can help you with as far as our experiences go, just ask, but check with your doctors as well!

Good luck


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






ArdenDD #199158 09-30-2019 02:26 PM
Joined: Apr 2017
Posts: 41
Likes: 1
Contributing Member (25+ posts)
Contributing Member (25+ posts)

Joined: Apr 2017
Posts: 41
Likes: 1
Oral cancer survivor here... it’s a tough road!! Just ask if you have any questions...

Joined: Sep 2019
Posts: 23
Member
Member

Joined: Sep 2019
Posts: 23
Did it take a long time for the thick rope,Ike mucous to resolve? My husband is 7 weeks post treatment and it’s still too painful to swallow. He’s had a feeding tube since mid-July.


Spouse of patient 7 weeks post radiation as of 9/30/19

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