| Joined: Jul 2019 Posts: 5 Member | OP Member Joined: Jul 2019 Posts: 5 | As I sit here waiting for TORS and neck surgery, I have been doing a lot about liquid calories and shakes because of swallowing issues.
Question- I am lactose intolerant so what would be best to use? I can use use almond milk but what else? Anyone else have this issue? And if so did you use a soy or plant protein powder?
I can mash veggies and stuff but I am thinking of bad day options. Trying to prep for worse and hope for better! | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | Jules 88,
I haven’t had this type of surgery, so o don’t have much to offer, but it’s good that you’re planning ahead with what if days.
I have trouble chewing and swallowing, and have no teeth! I was in the nursing home as of this morning, but fell this morning! I ate the puréed diet and was fantastic! I ate like I member ate before and put on two pounds of the 10 I lost, i have to find out how they prelate it.
At home myself, I used all kinds of liquids to purée depending what I was cooking. I’ve used water, chicken or beef broth, coconut milk, regular milk, and Soy milk, and maybe others I can’t while on pain meds for surgery tomorrow for my hip. Not exactly cancer related, but it does have an effect from lifestyle to medications!
Good luck with your surgery!
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Jul 2019 Posts: 5 Member | OP Member Joined: Jul 2019 Posts: 5 | Paul,
Any info is helpful! You just never know how things will work or what you may need. I think I have the need to control what I can as it feels like so much is now outta my control.
Hope your surgery goes well! | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | I think the same thing! Except when o know O have sound advice, and stayed with those doctors! Once I had four consults, and settled with one team who stood by me until i was cancer free!
Good luck with everythong!
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Aug 2018 Posts: 345 Likes: 8 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Aug 2018 Posts: 345 Likes: 8 | I used to be on faculty in an orthodontic department at a dental school. in the olden days, when patients had their jaws restructured, we wired their mouths shut for 6 weeks. i cannot imagine! They learned creative ways to get food in. one gal would put a cheeseburger in a blender and turn it into a shake! i suppose after awhile, even a cheeseburger shake might sound good.
Hopefully, you can find some options that you will enjoy
Spouse of 58 yr old with BOT cancer Stage 4a HPV16 positive 3 chemo treatments cisplantin 35 radiation treatments 7000 cGy former smoker/chewed tobacco for 38 yrs. 1/2020 diagnosed with cancer near TMJ 4/2020 chemo 5 days every 2 weeks 6/2020 proton therapy 9/21/2020 cancer free
| | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | Assistant Admin Patient Advocate (1000+ posts) Joined: Oct 2012 Posts: 1,275 Likes: 7 | Do you have access to a dietitian at your hospital? They can give you suggestions and even recipes. Don’t wait till the last minute. If there is one available, contact him/her now and pick their brains.
Gloria She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016. | | | | Joined: Jun 2019 Posts: 244 Likes: 2 "OCF across the pond" Gold Member (200+ posts) | "OCF across the pond" Gold Member (200+ posts) Joined: Jun 2019 Posts: 244 Likes: 2 | Hemp milk is really thin but full of nutrients, if that helps.
F 39 x-smoker no alcohol 05/20/19 T4aN1/N2bM0 SCC a whopper of a tumour at 8cm long & 4cm wide Pembro pre & post surgery RIG Glossectomy ND RFFR 08/13/19 RT x33 2x cispltin So far, no evidence of disease Now an author of a recipe book for mouth cancer patients
| | | | Joined: Jul 2016 Posts: 34 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Jul 2016 Posts: 34 | At lunch time I do a high protein chocolate Mass Weight Gainer that I get form the Vitamin Shoppe (191.9 OZ bag) I mix 2 !/4 or !/3 cups in a 16 OZ mixer with chocolate Almond milk. It tastes great and to me it's about simplicity. My swallowing is getting better after some practice and exercises following my tongue reconstruction though I don't think that it will ever be like it was before surgery.
5/31/16 Partial Glossectomy Right neck dissection 22 teeth extracted Six weeks of radiation Ended 8/19/16 2/8/17 Biopsy of epiglottis-cancerous 35 radiation treatments to the throat, End 11/17/17 8/23/19 Tongue reconstruction, left radical neck dissection
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