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#198308 05-08-2019 10:05 AM
Joined: May 2019
Posts: 2
dan1211 Offline OP
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Joined: May 2019
Posts: 2
Hi all please forgive me for spelling and grammar.Spelling and reading and grammar were my worst subjects in school. I have been diagnosed with Squamous cell carcinoma. I have three tumors the largest is my top right side all the way in the back of my mouth. And I have two in my lymph nodes on my lower back chin and one in front and down from my right ear. Anyway I would like to here from people that have had upper palate prostheses vs Free-Flap Reconstruction of the Hard Palate. I have had ct and pet scan and biopsy all that is done.

Joined: Feb 2015
Posts: 133
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Senior Member (100+ posts)
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Joined: Feb 2015
Posts: 133
Likes: 7
Dan: I don't know where you are located but there are CCC's all around.
Here's what I've posted before:

Based on my experience having had two operations for oral cancer since 2003, I would like to suggest four thoughts for newcomers.

1) Since oral cancer hits less than 1% of the population, get professional care from a center (CCC) that specializes in cancer and has oral cancer specialists on staff.

2) Don’t hesitate to travel extra hours to such a center-your disease can be life threatening. If distance worries you, see 3 below.

3) Follow-on care may be done at a location which the CCC works with and is nearer to you.

4) Don’t wait to get help, and don’t second guess expert opinion, but if concerned do get a second professional opinion.


SCC stage 1 Nov. '03,
SCC stage 2 (clear mrg, no rad, no chemo) RND, Feb. '15
SCC stage 1, lower gum Mar '23

TLC356

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