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Re: Radiation begins next week (scary times!) [Re: TongueCancerBeGone] #198303
05-08-2019 06:59 AM
05-08-2019 06:59 AM
Joined: Jul 2012
Posts: 3,242
NYC
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PaulB Offline
Patient Advocate (old timer, 2000 posts)
PaulB  Offline
Patient Advocate (old timer, 2000 posts)
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Joined: Jul 2012
Posts: 3,242
NYC
aquaphor I’ve used for several radiation treatments. You can buy in a store otc or at Costco where it’s in a big container. Put on after radiation treatment, not before.

Good luck


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Re: Radiation begins next week (scary times!) [Re: TongueCancerBeGone] #198307
05-08-2019 09:12 AM
05-08-2019 09:12 AM
Joined: May 2019
Posts: 3
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Timothy L Parks Offline
Member
Timothy L Parks  Offline
Member
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Joined: May 2019
Posts: 3
Thank you Mark. This entire thread very helpful.

Timothy


Timothy L Parks
Re: Radiation begins next week (scary times!) [Re: TongueCancerBeGone] #198309
05-08-2019 10:32 AM
05-08-2019 10:32 AM
Joined: Sep 2018
Posts: 71
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VirgoMomof3Boys Offline
Supporting Member (50+ posts)
VirgoMomof3Boys  Offline
Supporting Member (50+ posts)
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Joined: Sep 2018
Posts: 71
You're welcome!

I was given the little samples of aquafor to rub on my skin from the radiation nurse but my main radiation oncologist told me to use Eucerin. So I guess either of those will work. And the mask is a bit anxiety inducing for sure, and I'm a pretty chill person! I did fill a script of Ativan (lorazepam) to take about 30 minutes prior to radiation but I did get to the point of not needing it. You can ask for that (or whatever they want to prescribe for the anxiety) to help get you through. Whatever helps right?


Laura Age 40
Tongue lesion on left side grew and was hurting in mid-August
Dx as squamous cell carcinoma on 9.18.18
Left Neck Dissection and tongue surgery, lost a fourth of my tongue on 10.1.18, tumor had grown to a T3
Margins were clear except front section of tongue margin had three stray cancer cells that were not in the tumor
Additional surgery 10.18.18 to remove another cm near where the stray cells were found
33 radiation treatments from Nov 2018 through Jan 2019
Re: Radiation begins next week (scary times!) [Re: VirgoMomof3Boys] #198311
05-08-2019 07:50 PM
05-08-2019 07:50 PM
Joined: Mar 2018
Posts: 61
Maine
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Vicky1 Offline
Supporting Member (50+ posts)
Vicky1  Offline
Supporting Member (50+ posts)
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Joined: Mar 2018
Posts: 61
Maine
Dad had good luck with Miaderm Radiation Relief. His skin never ulcerated or opened. He used Aquaphor on his lips.


My father's information:
65 years old
Diagnosed 2/28/18 w Stage 4, N0 Verrucous carcinoma (VC) an uncommon variant of SSC
Mandibulectomy and free-flap reconstruction 5/30/18
Diagnosis changed to SSC.
Began treatment of 30 rads and 5 Cisplatin Cycles on 7/18/18
Decided not to do any more Cisplatin after the first one.
Finished treatment on 8/31/18.
3.19 Abscess & Recurrence wide mouth resection
4.16.19 Scapular Flap Reconstruction surgery
9.6.19 Clear CT!
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