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World Voice Day #198137
04-16-2019 08:45 AM
04-16-2019 08:45 AM
Joined: Jul 2012
Posts: 3,213
NYC
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PaulB Offline OP
Patient Advocate (old timer, 2000 posts)
PaulB  Offline OP
Patient Advocate (old timer, 2000 posts)
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Joined: Jul 2012
Posts: 3,213
NYC
I never knew there was a World Voice Day, but there is, and today is the designated day, April 16th. I don’t know if this day was coordinated with Head and Neck Cancer Awareness Month in April, maybe it was? I was reading this started in 2002. Apparently, this year, there are 25 events in the U.S. It’s a little too late today to visit any of the participants, if their in my area, but I will keep this in mind for the future.

I did utilize several SLP’s, Speech and Language Pathologists, and a Voice Doctor (otolaryngologist) at the hospitals Voice Center, through the years, and they were helpful.

https://www.entnet.org/WorldVoiceDay


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Re: World Voice Day [Re: PaulB] #198494
06-10-2019 09:44 PM
06-10-2019 09:44 PM
Joined: Mar 2019
Posts: 56
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Crystal J Offline
Supporting Member (50+ posts)
Crystal J  Offline
Supporting Member (50+ posts)
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Joined: Mar 2019
Posts: 56
I know I'm late in responding to this --- but I am so glad to know there is a Day dedicated to this Awareness! Thank you, Paul B .

One of my otolaryngologists is the Director of Voice & Swallowing disorders . For many years he just did my esophageal dilation ( because Gastroenterology had trouble with perforating me). But now, he is one of my oncology surgeons as well ( not my Primary surheon, though). Anyway, he rates my Speech as a 3.0, on the dysarthria scale.

I have a Moderately Dysplastic lesion right beside my vocal cords, in the left side Piriform Fossa. He did Laser ablation surgery to it in april, and he recently scoped me and it's still there . No change . So, eventually I have it done again.
My invasive SCC had already recurred in my Floor of mouth & reconstructed tongue Flap-- I surely don't want it down my Hypopharynx as well..... He is hoping the Laser surgery will keep it at bay.

Voice problems are terrible .... Many of us here know all the various implications of having this problem! Unfortunately...

Crystal


4/2017- Stage III SqCC- Tongue
+PNI
Posterior Margin +
Invasive moderately differentiated keratinizing SqCC
Tumor- 6.3 Centimeters
Invades tonsil & salivary glands
Negative for all HPV types
Subtotal Glossectomy, bilateral ND, Tracheo, Mandibullect, Free Flap reconstruction.
10/2017 Relapse, Recur to tongue, Mets to lip, All Pos. Margins.
12/2017 Recur BOT + Marg, re-xcisn Lip, + Marg
2/2018 - 7 wks IMRT
4/19 New Primary SqCC, Floor mouth & tongue flap . 1 mm Marg
New Dx Field Cancerization


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