| | Joined: Feb 2019 Posts: 3 Member | OP  Member
Joined: Feb 2019 Posts: 3 | Hi
My name is Lincoln and I'm 55 and just had oral surgery for tongue cancer. I'm in NYC. Had surgery through Weill-Cornell at NY Presbyterian on 68th street. The doctor got the whole tumor, 8mm deep, took out over thirty lymph nodes which showed no sign of disease. I see a radiologist on Monday. My surgeon said new data showed a 25% possible recurrence rate without radiation and 5% or less with it. I can talk and swallow and can manage the pain on Advil now. Eating mushy food one and a half weeks from surgery. I can't wait to chat with people here!
Thanks in advance for your support and guidance-
Peace
Lincoln
lincolnob
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF, Lincoln! You're in the right place to get info and support to help you get thru whatever your future holds. Our members are patients and caregivers from all over the world who have been thru oral cancer. Knowing theres many others here who have had similar surgeries and treatments helps most people feel better about what they are facing.
Best wishes with your continued recovery.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Feb 2015 Posts: 134 Likes: 7 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Feb 2015 Posts: 134 Likes: 7 | Lincoln: Oral cancer is specific to a very small group and that makes it important to be sure you deal with those with the greatest specific experience (read Comprehensive Cancer Center).
In New York you have Sloan Kettering, in Boston, Dana Farber, etc. I know that with Dana Farber there is information on their website that says you can send in your medical files and they will give you a second opinion.
If I were in New York I would find a way to send mine to Sloan Kettering. Of course, free advice is worth what you pay for it. Best of luck.
SCC stage 1 Nov. '03,
SCC stage 2 (clear mrg, no rad, no chemo) RND, Feb. '15
SCC stage 1, lower gum Mar '23, all lower gums and teeth removed
TLC356
| | | | | Joined: Feb 2019 Posts: 3 Member | | OP Member
Joined: Feb 2019 Posts: 3 | Thanks all.
I’m twelve days into radiation and have mucositis spreading around my mouth. They said it would happen. I will post more in a specific forum.
Lincoln
lincolnob
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 4 | Welcome!
I responded to your other post.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Sep 2018 Posts: 9 Member | | Member
Joined: Sep 2018 Posts: 9 | So glad to read that you are doing well. Stay positive. An upbeat spirit goes a long way!
Diane Walters Van Dyke
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