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Update from CT scan #197609
11-15-2018 10:12 AM
11-15-2018 10:12 AM
Joined: Aug 2018
Posts: 157
C
ConnieT Online OP
Senior Member (100+ posts)
ConnieT  Online OP
Senior Member (100+ posts)
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Joined: Aug 2018
Posts: 157
saw radiologist today and he did a scope plus CT scan yesterday. tumor has shrunk and his throat looks good except for epiglottis is raw.

He continued to tell them that he does all the nutrition he should though they know the truth. You don't lost 60 lbs in 2.5 months doing the correct nutrition.

He has never had his taste affected, he barely took pain meds. I call him quite fortunate.

They did say to him that of course he is tired but he's probably seriously lacking in minerals and vitamins from lack of nutrition for so long and told him that he should be trying to eat all the things I've offered and he has refused. Good for him to hear it from someone else but I doubt it sticks.

just thought I would update.


Spouse of 56 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
Re: Update from CT scan [Re: ConnieT] #197610
11-15-2018 11:52 AM
11-15-2018 11:52 AM
Joined: Jun 2013
Posts: 261
alabama
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KristenS Offline
Gold Member (200+ posts)
KristenS  Offline
Gold Member (200+ posts)
K

Joined: Jun 2013
Posts: 261
alabama
Glad to hear the tumor is going down!

Does he take anything for reflux? I'm on Prilosec pretty much permanently these days, and it does help ... not sure if it's something he needs or is even ready for, but it might help. Worth asking. Though I've also learned it affects B12 absorption (which I struggle with).

Does he have a plan for going forward, other than working on nutrition?

And ((hugs)) to you!


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery
Re: Update from CT scan [Re: KristenS] #197611
11-15-2018 04:14 PM
11-15-2018 04:14 PM
Joined: Aug 2018
Posts: 157
C
ConnieT Online OP
Senior Member (100+ posts)
ConnieT  Online OP
Senior Member (100+ posts)
C

Joined: Aug 2018
Posts: 157
he has taken prilosec and similar stuff for over 20 yrs. He did admit that a lot of his problem is that he eats and then lays down. He has done that for over 20 yrs too. I'm supposed to pick up some patches for the nausea. They suggested he use the numbing stuff and/or Tylenol for the pain of swallowing since he won't take pain meds prescribed and try to start swallowing more than water.

Dec 18th is his PET scan. Dec 20th is the follow up with the oncologist and radiologist. I've got to call to find out when the appt with ENT is scheduled.

Other than nutrition, there are no other plans in place other than follow up every so many months.

Last edited by ConnieT; 11-15-2018 04:15 PM.

Spouse of 56 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.

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