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Nausea with PEG #197572
11-11-2018 02:07 AM
11-11-2018 02:07 AM
Joined: Oct 2018
Posts: 1
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DebMcOfWA Offline OP
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DebMcOfWA  Offline OP
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Joined: Oct 2018
Posts: 1
I've been reviewing all of the threads to find someone else who experiences nausea, not from food or eating, but from the PEG. I'm sure I'm not the first!! Having the long tube on my stomach tube, I returned to the GI doctor because it was extremely painful. He loosened the connection between the inside of my stomach & my outside skin by about an inch and started me on 2000 mg/day've been on Keflex for an infection. Maybe I'm just sensitive but I find any movement of the tube inside my stomach to be quite nauseating. I was told that I'd be able to return to regular activities but doing anything that requires movement is miserable. Sometimes I feel like a crybaby which is totally not me. Anyone have any suggestions??

Re: Nausea with PEG [Re: DebMcOfWA] #197574
11-11-2018 05:59 AM
11-11-2018 05:59 AM
Joined: Oct 2012
Posts: 1,044
Toronto, Canada
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gmcraft Offline

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gmcraft  Offline

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Joined: Oct 2012
Posts: 1,044
Toronto, Canada
Hi Deb, Welcome to the forum. I think your best bet is to return to the GI specialist and ask him to take a look at your PEG. You shouldn’t b in so much discomfort with the tube. It soundsike somehing is not right with the placement.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
Re: Nausea with PEG [Re: DebMcOfWA] #197579
11-11-2018 10:55 AM
11-11-2018 10:55 AM
Joined: Aug 2018
Posts: 169
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ConnieT Online
Senior Member (100+ posts)
ConnieT  Online
Senior Member (100+ posts)
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Joined: Aug 2018
Posts: 169
my husband has dealt with PEG issues from clear back in August. The last time he was hospitalized, they put in a new one. He's been fine with the pain since but nausea is still an issue. He was told to take the nausea stuff before eating, at least 20 minutes. Of course, he takes them then and immediately adds formula to feeding tube and throws up. The things I've been told about nausea is that once it starts, it's hard to stop so you need to be on top of it. The feeding tube was truly the hardest part of this whole treatment plan for my husband besides his stubbornness to listen and do what he's been told to do.

Best wishes....


Spouse of 56 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
Re: Nausea with PEG [Re: DebMcOfWA] #197584
11-11-2018 01:59 PM
11-11-2018 01:59 PM
Joined: Jun 2017
Posts: 29
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Magnum Offline
Contributing Member (25+ posts)
Magnum  Offline
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Joined: Jun 2017
Posts: 29
Hi Deb,

When did you have the tube placed? I've had mine since Feb 2018 and was told it needs to be replaced every 3 months (which I do religiously). I've had problems with nausea (from the chemo) so I take anti-nausea pills every morning and every afternoon to keep it at bay. I've also had problems with granulation (tissue and blood vessels that form around the feeding tube) which is extremely painful. The only way to get rid of it once it appears is to use silver nitrate (prescription) which is also extremely painful but once it calms down it does get rid of the granulation. Keeping the area dry around the tube combats the granulation. If movement of the tube bothers you, have you tried taping the tube to your body so it doesn't move (swing back and forth while you walk, etc)? That works for me.

I hope this helps you!

Susan


Susan
04.12.16 1st surgery; rt partial glossectomy; neck dissection; 2/38 lymph nodes positive
05.12.16 Resected T2, N2b, M0
05.24.16 Rad, Cisplatin
10.03.16 Clear PET
04.11.17 Clear PET
06.09.17 1st recur
06.21.17 2nd Surg: rt partial glossectomy; forearm free flap; rt thigh skin graft
11.09.17 2nd recur
11.30.17 Nivolumab
02.06-16.18 Brachytherapy
06.12.18 3rd recur
06.12.18 Lt axillary lymph node SCC
07.05.18 Pain pump placd
08.23.18 Pump removd
10.29.18 PET-CT responds to treatmnt



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