| Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,409 | According to statistics about 240,000 American men are diagnosed with prostate cancer each year. As of three days ago I'm one of them. Just shy of 65, I'm right in the sweet spot agewise.
I do realize that the odds, oddly, are in my favor. Many men with this diagnosis - perhaps even some of our family - opt to forgo treatment and just watch and wait, and there are stories upon stories of men who've lived until a ripe old age (I've always planned on 104 like my great grandfather) without it ever causing a problem. Or alternatively go through one of the various treatments with the same result. Still, we all know what it's like to have a doctor tell you that you have cancer, and nearly 30,000 die of this nasty business every year. This includes one of my closest friends, who had a radical prostatectomy and still passed on a year or two later.
I'm awaiting an appointment with a specialist soon to learn about my options, and I've already joined a couple of online forums. This will always be my online home of course... but I might be shifting my emphasis for awhile until I get this thing sorted out.
Uhboy... here we go again!
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Jun 2013 Posts: 346 Likes: 3 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jun 2013 Posts: 346 Likes: 3 | Aw, man, I am so sorry! I hope the odds stay in your favor, but I'm awfully sorry you have to deal with the big C word again in any form! We'll be rooting for you!
Surgery 5/31/13 Tongue lesion, right side SCC, HPV+, poorly differentiated T1N0 based on biopsy and scan Selective neck dissection 8/27/13, clear nodes 12/2/13 follow-up with concerns 12/3/13 biopsy, surgery, cancer returned 1/8/14 Port installed PEG installed Chemo and rads 2/14/14 halfway through carboplatin/taxotere and rads March '14, Tx done, port out w/ complications, PEG out in June 2017: probable trigeminal neuralgia Fall 2017: HBOT Jan 18: oral surgery
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im very sorry to hear your news, David!!! How I hate hearing of any of our OC family being diagnosed with any other serious illness... especially another kind of cancer! Wishing you all the very best with beating your new cancer. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,409 | Thank you, Kristen and Christine. Those sentiments mean a lot, especially coming from two people who have fought so hard. I have my first meeting with the oncology team this Wednesday. We shall see!
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,409 | So. After meeting a couple of specialists I've found that because my cancer is relatively small and slow-growing, treatment right now isn't warranted. I'll be having an MRI and another biopsy in a few months, but both doctors were of the opinion that my case warrants only what they call "active surveillance". They didn't expect to see any changes for at least 5 years.
I do still have cancer of course, but: Whew!
Thanks for everyone's support.
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Jun 2013 Posts: 346 Likes: 3 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jun 2013 Posts: 346 Likes: 3 | Glad to hear it!
It's my understanding that my grandfather had this, and it was warranted 'not worth treating because of his age'. Which in our family is a laugh because he was like 85 at the time and is now over 100 and still going. May you outlast him (but not get as cranky). ((hugs))
Surgery 5/31/13 Tongue lesion, right side SCC, HPV+, poorly differentiated T1N0 based on biopsy and scan Selective neck dissection 8/27/13, clear nodes 12/2/13 follow-up with concerns 12/3/13 biopsy, surgery, cancer returned 1/8/14 Port installed PEG installed Chemo and rads 2/14/14 halfway through carboplatin/taxotere and rads March '14, Tx done, port out w/ complications, PEG out in June 2017: probable trigeminal neuralgia Fall 2017: HBOT Jan 18: oral surgery
| | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | Assistant Admin Patient Advocate (1000+ posts) Joined: Oct 2012 Posts: 1,275 Likes: 7 | David, thanks for updating us. It sure is good to hear no treatment is needed for now.
Gloria She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016. | | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,409 | Thanks Kristen and Gloria. As far as outlasting your grandfather -- well that's a tall order! I'm glad to read he's topped a century as I hear the second hundred years are easier. (You'd have to ask my wife if I'm cranky or not....)
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | |
Forums23 Topics18,235 Posts197,106 Members13,293 | Most Online1,788 Jan 23rd, 2025 | | | |