#19565 01-30-2006 02:26 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Apr 2004 Posts: 837 | jag,
As Gary pointed out, there are many factors involved in getting as complete a picture as possible of the nature of your husband's tumor and the surrounding area. Even if the pathology report says all nodes are clear, I would still urge you to get to a major cancer center for a second opinion. In my case, the pathology report showed clean margins all around after a partial glossectomy and neck dissection, but there were some signs that the tumor was becoming aggressive and my cancer team pushed strongly for radiation as well. Many people here can tell you it's best to hit this disease hard at the first opportunity.
Please keep us posted on how your husband is doing, and feel free to ask questions as you go along -- there are plenty of people here who have been through something very similar and can give you great support.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#19566 01-30-2006 10:12 AM | Joined: Jan 2006 Posts: 8 Member | OP Member Joined: Jan 2006 Posts: 8 | I guess I am somewhat confused as to what is floor of mouth and what is tongue You all seem to indicate tongue is it one in the same? Thanks for your help jag | | |
#19567 01-30-2006 11:28 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | I THINK the floor of the mouth in under the tongue between the base of the inside of the tongue and the front teeth. There is a very large salivary gland there in the the middle.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#19568 01-30-2006 12:20 PM | Joined: Jan 2006 Posts: 8 Member | OP Member Joined: Jan 2006 Posts: 8 | Thanks for all the answers to questions I will know more tomorrow. However, let me say the Dr we are seeing is considered one of best aggresive cancer surgeon in country. He works out of a cancer research center but we are only an hour from Boston so I will not hesitate to go there if I feel the need | | |
#19569 01-30-2006 04:12 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Dear jag, I would like to know more about the "floor of mouth" diagnosis. That was John's diagnosis. During surgery, they removed part of his tongue, part of the floor of mouth and jaw bone on the side with the tumor. I have always been somewhat confused about the diagnosis. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#19570 01-31-2006 01:45 AM | Joined: Jan 2006 Posts: 8 Member | OP Member Joined: Jan 2006 Posts: 8 | I understand that tongue and floor of mouth are close but I am concerned the bx was floor of mouth and now I see all this talk about glossectomies. I guess I will know what it means later today . My husband's actual bx'ed lesion is so small I am trying to keep up hope that it will me a less radical procedure needed.
jag | | |
#19571 02-01-2006 10:39 AM | Joined: Jan 2006 Posts: 8 Member | OP Member Joined: Jan 2006 Posts: 8 | Surgery scheduled Monday. Wide excision of lesion with mapping. All LN clear. | | |
#19572 02-01-2006 10:47 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | "OCF Down Under" "Above & Beyond" Member (500+ posts) Joined: Dec 2003 Posts: 528 | Best wishes for successful treatment. Please let us know. Love from Helen
RHTonsil SCC Stage IV tx completed May 03
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#19573 02-01-2006 12:19 PM | Joined: Jan 2006 Posts: 8 Member | OP Member Joined: Jan 2006 Posts: 8 | We feel very blessed that this was caught early and is considered a stage 1 lesion. I will let you know after his surgery Monday how everything goes Thanks to all for your suppport and workds of kindness | | |
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