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| Joined: Feb 2009 Posts: 22 Member | OP Member Joined: Feb 2009 Posts: 22 | When you live only on liquid through a feeding tube, how do you add sufficient fiber. Adults should have 25 g a day but most only get 15 g. daily. The formula I'm on has zero fiber in it. I've added a fiber powder which equals 9 g daily and has only produce lotsa lotsa gas and slightly firm diaherra. Any one have suggestions? | | | | Joined: Feb 2017 Posts: 67 Likes: 1 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Feb 2017 Posts: 67 Likes: 1 | I can only tell that during treatment my husband, eating with a PEG tube, was having a huge struggle with lots of digestive issues. The protocol from the Cancer Center just was not providing results that were improving his situation. We made an appointment with the GI doc who put in his PEG tube. We took everything the Center told us to do and reviewed it with him. Best money we ever spent. He modified what we were doing to deal with several digestive issues related to treatment, with fiber management being one of them. In a nutshell, he felt they were being too conservative with what they were telling us to do. It made a huge difference. He had us try his first line of treatment and told us to call ASAP if this did not work and he would help us modify. He is still using his PEG tube but less and we have had to adjust as he has started eating more foods. You may need to let someone on your team know and ask for a different approach.
Wife to DP. DX SCC BOT 1/31/17 First treatment 2/27/2017 Cisplatin 3 times and IMRT Last treatment 4/18/2017 Clear PET 7/13/2017 PEG removed 8/4/2017 | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Do you have a nutritionist at yoru treatment facility you can talk with? There are many formulas that have fiber added. Check with your doc or the nutritionist. Some patients add benefiber or other similar over the counter fiber product to their formula. Easiest way to add things is if you are doing the over night feedings thru the kangaroo pump. You can put 3 cans (with a little water) into a 1000ml bag along with fiber or other additive, shake well and let it run overnight while you sleep. No feeing pump? Check with your doc or nutritionist to arrange to give you a prescription for one. You can get this thru a medical supply company along with all the necessary requirements (drain sponges, syringes, etc). ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Sep 2016 Posts: 111 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Sep 2016 Posts: 111 | ISO-Source contains 3.8 g per box so to maintain the minimum you would use 7 boxes per day.
You may want to supplement your current formula with another source to reach your daily fiber goals. Talk with a doctor or nutritionist before you start.
In Pittsburgh, we have GNC's and they have all sorts of powdered supplements that could be pushed through the PEG.
Good Luck
1997 SCC Tumor on tongue - Partial Gloss 1997 Met to Lymph Radical Neck Dissection / 2nd Partial Gloss 6 weeks chemo and radiation Brachytherapy 2011 Stroke 2014 Recurrence SCC at Base of Tongue / Hemi-gloss Free Flap reconstr from thigh PEG Tube Radiation Permanent Issues with speech and swallowing 2018 - Bleeding throat / mouth 2019 - Bleeding throat / mouth 2019 - 3rd diag Cancer SCC Base of mouth / jawbone 2019 - Aug remove portion of jaw / right pec det / free flap closure and tongue | | |
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