#19425 01-25-2006 02:40 PM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) |  "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | This is the club that nobody WANTS to join and everone should.
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#19426 01-25-2006 10:14 PM | Joined: Nov 2005 Posts: 306 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2005 Posts: 306 | Nancy, Sorry to have you among us, but welcome. It is NEVER too late for another opinion. Even after treatment has started. Good docs welcome more input. Go get at least one more opinion. Please.
There are many of us here that have made it past cancers in late stages. I remember being so frightened by all those "odds". Ignore them. You aren't concerned about "trends" in survival rates anyway, you are only interested in your husband's survival right now. The "odds" aren't about him - only about the group he has joined. Focus on your guy, and ignore the math. Its grim and confusing and doesn't really apply anyway.
It is my opinion that he needs to know what he is up against. There are enough nasty surprises with our cancer. Don't underestimate him. The more I learned about my condition the more frightened I became, but also, the more determined I became. Fear is a powerful and useful thing to harness. Fear converts easily into anger and anger to resolve. Get him to read everything on this site. I wish I had done so much earlier.
Get mad. Get another opinion. Take charge. Fight hard. We are with you. We are with your husband too. Be strong. Tom
SCC BOT, mets to neck, T4.
From 3/03: 10wks daily multi-drug chemo,
Then daily chemo with twice daily IMRT for 12 weeks - week on, week off. No surgery. New lung primary 12/07. Searching out tx options.
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#19427 01-26-2006 02:19 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Darrell,
Now my scientific curiosity has been aroused.
Do you have work at stupid comments or does this just come naturally to you?
What really bothers me the most is that in 64 more posts you'll be a "patient advocate". God help us.
Brian - you HAVE to raise the bar!
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#19428 01-28-2006 10:20 PM | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | "The radiology oncologist said that she did not recommend the imrt..she wants to cover the entire area, and says that she should wants to get the tonsil bed."
Nan, I received roughly the same rationale from my Rad Onc when I asked about IMRT -- That effectively it wasn't the best approach in my case because he is trying to blanket an area. (He is using IMRT for some cases).
In my case, it's a moot point now because the series is completed.
Pete
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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