| | Joined: Jan 2015 Posts: 18 Member | OP  Member
Joined: Jan 2015 Posts: 18 | I replaced my regular G tube with a low profile Mickey Button in June of last year. My doctors warned me against the low profile saying it was only for children and that I would have lots of problems with it. I researched it before asking to change and they were not correct. It has been a wonderful change. It allows me much more freedom. I can even swim with a patch. Golf is more fun, lying in bed is more comfortable. I am very careful what goes into this tube but then I was before. It is a 20 French just like my old one. Go to Mickey website and take a look.
Johnnie
Stage 4 cancer survivor 2002
RND
IMRT
Chemo
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Thanks Johnnie! Whoever told you it was only for kids is wrong, adults are ok to use the Mickey. We have several members over the years who have gone the Mickey route with success. Ive considered it myself. Many patients arent adept at their own care enough to manage doing the tube exchange which is why I think patients are steered away from it. PS... Congrats on your 15 years post rads cancerversary 
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | | "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | Hi Johnnie,
My husband used the Mickey button for 4 years. It is far superior to the long pendulous type tube. It would take me less than 10 seconds to change the Mickey button . I encourage others I meet on this journey to ask for the Mickey.
Best wishes,
Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
| | | | | Joined: Sep 2016 Posts: 111 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Sep 2016 Posts: 111 | Johnnie -
The low profile MIC Button is so much better than the standard G-tube.
I've been using the product for 2 1/2 years with only a few very minor issues.
In my opinion, its the best way to go for long term feeding assistance
1997 SCC Tumor on tongue - Partial Gloss
1997 Met to Lymph
Radical Neck Dissection / 2nd Partial Gloss
6 weeks chemo and radiation
Brachytherapy
2011 Stroke
2014 Recurrence SCC at Base of Tongue / Hemi-gloss
Free Flap reconstr from thigh
PEG Tube
Radiation
Permanent Issues with speech and swallowing
2018 - Bleeding throat / mouth
2019 - Bleeding throat / mouth
2019 - 3rd diag Cancer SCC Base of mouth / jawbone
2019 - Aug remove portion of jaw / right pec det / free flap closure and tongue
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | I have a question to all the Mickey users... Where is your Mickey located? If going from a PEG tube to the Mickey is placed in the same tube site? For some odd reason I was always under the impression the PEG or J/G tubes were located near the center of a patients abdomen. I dont know why but I always thought of the Mickey located slightly off center, more like a couple inches to the side. Thanks in advance for any replies
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jul 2016 Posts: 85 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jul 2016 Posts: 85 | My peg g tube is located high but to the left of middle. I did ask the surgeon about placement and he stated it is different for each person as it depends on where the stomach is located. Makes me wonder if my heart is also off center ! LoL. Just kidding !
Sept 2002 Rt breast cancer no chemo or radiation.
March 2015 Rt tonsil cancer - walnut size lump rt side neck.
March 2015 Scan, biopsy confirm
March 2015 Port, G tube placed, 10 teeth removed.
July 2015 completed 5 chemo/35 radiations
Sept 2015 Cat Scan all clear
July 2016 G tube, port still in place
Ive had Thyroid "graves disease" and Lupus for many years.
4 kidney stone surgeries past 3 mo with over 100 stones still there !
*** Update... Jo passed away 12/20/17 ... RIP Jo ***
| | | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | | "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | Hi Christine, both these tubes are placed within the stomach. They are both PEG tubes, just differing kinds. Kris's were within an inch of each other.
Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
| | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Both of my Mic Key buttons were put in the same hole as my dangler, the second one placed 3 weeks after the dangler was placed to allow the stoma to develop.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | | | | Joined: Jan 2015 Posts: 18 Member | | OP Member
Joined: Jan 2015 Posts: 18 | I have now changed from a Mickey to a Mini One made by Kimberly Clark. It is the same profile as a Mickey but much softer. It is even more comfortable than a Mickey. They are not well advertised and I had to locate do some calling to get my doctor to prescribe it as part of my protocol. Now the medical supply distributor just delivers it every three months. My Mickey and this Mini go into the same hole originally made for my dangler. They are exactly the same procedure for replacement as the dangler. If you get one, you will never go back. I swim with mine. There are water proof patches you can buy to cover it. It cannot be seen when I wear a T shirt. I sleep on that side. I play golf with it.
I still have my doctor remove and insert my Mini every three months as we are not close to medical and my wife does not think she could do it. I know I could if I had to. It takes the doctor all of 5 minutes.
I am now dealing with a wisdom tooth issue but that is another story.
Johnnie
Stage 4 cancer survivor 2002
RND
IMRT
Chemo
Johnnie
Stage 4 cancer survivor 2002
RND
IMRT
Chemo
| | | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | | Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | Thanks for sharing the information. Members who have a tube will appreciate this, I am sure.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
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