| | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Feb 2004 Posts: 598 | It's been a long time -- over nine years since I completed treatment. Had my usual physical and blood work, and my alkaline phosphatase came in a little bit high. They did a fractionation of the result, and found the liver component was high. Ultrasound showed three spots between 1 cm and 2.5 cm on right lobe, with suggestion that these were metastasis. Had MRI yesterday, and got the call from my GP this morning that he wants to see me on Monday to "discuss my results." We all know what that means.
So, it would seem that my journey begins anew. With the spots fairly small, and all within the right lobe, I'm hoping it's resectable. The folks at the James Cancer Hospital are amazing, so I have total faith that if it can be done, they will do it. It just really, really sucks right now . . .
Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
| | | | | Joined: Sep 2016 Posts: 111 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Sep 2016 Posts: 111 | Jeff -
Sorry to hear about your new health issues. Hopefully its confined to the liver and can be resected or treated without excessive damage.
So your GP had the time to call and schedule an appointment on Monday, but unable to discuss the results today. That makes for a LONG weekend.
(I guess there really is no great way to give or receive the news.)
Good Luck
1997 SCC Tumor on tongue - Partial Gloss
1997 Met to Lymph
Radical Neck Dissection / 2nd Partial Gloss
6 weeks chemo and radiation
Brachytherapy
2011 Stroke
2014 Recurrence SCC at Base of Tongue / Hemi-gloss
Free Flap reconstr from thigh
PEG Tube
Radiation
Permanent Issues with speech and swallowing
2018 - Bleeding throat / mouth
2019 - Bleeding throat / mouth
2019 - 3rd diag Cancer SCC Base of mouth / jawbone
2019 - Aug remove portion of jaw / right pec det / free flap closure and tongue
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 4 | I'm sorry to hear of your troubles, Jeff. Hopefully it is something else, other than cancer, and biopsy, which I assume may be done if the MRI is suspicious, to prove cancer, is negative. It's good to hear you're up to battle whatever it may be! Besides resection for liver cancer. there is radiation like cyber knife, proton therapy, that is more precise, if it's needed. Was your original bot tumor HPV positive? These prove to be more sensitive to treatment in distant metastseses too, and can be curative, but am really jumping the gun until you find out more. Waiting is the worst, but there may be more testing or treatment waiting, besides for the MRI if it's suspicious. Good luck
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | | Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | Jeff, so sorry to hear about your new challenges. Hopefully like PaulB said it's something other than mets. Do keep us posted and keeping you in my thoughts
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
| | | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | | "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | Hi Jeff, I'm so sorry to read your update. After 9 years!
I'm sure that there will be many more investigations to rule cancer either in or out.
I want you to know that I will be keeping you in my thoughts. Please stay positive and don't borrow sorrow from tomorrow.
Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
| | | | | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Feb 2004 Posts: 598 | Thanks for the good thoughts. We met with physician's assistant on Friday, and MD today -- 3 lesions on liver, 1 on spleen, 1 on spine. Next step likely a biopsy to confirm cancer type, but probably the original SCC.
Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Ive been following along your thread, Jeff. Im so very sorry you are going thru this. Im hoping this turns out to be nothing serious. Keep us posted with any updates, biopsy results, etc. If you need to vent we are the ones who are here to listen. You can lean on us.
Best wishes with everything!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | | Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | I'm sorry about the turn of events. It is a difficult situation to be in. Like ChristineB said, we are here for you. Do let us know what your treatment plan is. Is there any possibility of your getting immunotherapy?
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
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