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| | Joined: Jul 2009 Posts: 1,409 Likes: 1 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 Likes: 1 | Welcome to our family, LPV. We're all here to help you get through your treatment and beyond.
Count me as one more who chose not to have a PEG and later regretted the decision. And I did not have chemo.
I was almost exactly your weight and height prior to rads. At the end of it I'd lost 30 pounds, which I attribute to not getting enough calories... which in turn I attribute to the fact that it was so painful to swallow the nutrition drinks (even with viscous lidocaine to numb my mouth) that I did not drink nearly enough.
I'm glad you're thinking about this issue and getting good advice from the folks here.
Please keep us posted as you go along.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Sep 2016 Posts: 3 Member | | OP Member
Joined: Sep 2016 Posts: 3 | I would like to thank everyone for their replies and advice. At this time I have decided not to use the PEG tube. I have an agreement with the Oncologist that at 8% loss of body weight a PEG tube will be inserted.
I will be starting another tread on the Currently In Treatment Forum. Thank you Again. LPV
LPV, 62 years old, non smoker,
7/26/16 CT scan,
8/4/16 Biopsy base of the tongue findings inconclusive.
8/9/16 PET/CT scan
8/18/16 Biopsy base of tongue, confirms Invasive SCC Stage 4
HPV-16
9/18/16, 6,1" approx 187/lbs.
9/28/16 loading dose Cetuximab.
| | | | | Joined: Aug 2012 Posts: 214 Likes: 1 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Aug 2012 Posts: 214 Likes: 1 | It's better to have it and not need it, than to need it and not have it. I would schedule it to be inserted around week 4. I also found, it took some time to learn how your body reacts to feedings.
Hockey Dad
43, No smoke, Small BOT HPV+16
8/30/12 Biopsy found SCC in Lymph node (removed)
9/19 DX 4a T1N2aM0
10/1 TX 2x Cisplatin 35 IMRT 70 gry (Done 11/15)
PEG tube in 11/7. Out 1/4, Back at work 2/4/13
PET 2/13 Clear, 10/16 all Scopes Clear, 4/14 Chest X-ray Clear, 5/14 Abdominal ultrasound Clear, 8 yrs clean!!!
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