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Hi, I'm new to all of this! #192813
08-04-2016 06:14 AM
08-04-2016 06:14 AM
Joined: Aug 2016
Posts: 2
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bec293 Offline OP
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bec293  Offline OP
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Joined: Aug 2016
Posts: 2
Hi all,

My name is Rebecca and I'm 39 years old, mum to a very energetic 5 year old boy. I'm Australian but I live in Cambodia (I'm a kindergarten teacher), but I'm staying in Thailand for a couple of months for treatment. I don't know anybody here, it's just myself and my little boy.

I was diagnosed with adenoid cyctic carcenoma in my sinus cavitiy three weeks ago. I've since had surgery to remove part of my jaw (I was lucky enough to have my mum and sister come and help out with my son for two weeks, but they've gone back to Aus now). I have a temporary prosthetic plate to cover the hole that now exists between the roof of my mouth and sinus cavity. It's going to be replaced with a more permanent one after radiation. Radiotherapy will start next Tuesday and will go for six weeks. My team of doctors are very positive this will kill the remaining tumor that couldn't be removed during surgery.

In the wait until radiotherapy starts I've been reading a ton about anti-cancer foods and have changed my diet completely. I have a small kitchen in the hotel I'm staying in, and I'm having lots of fun cooking cancer fighting/immune system boosting meals.

As I say to my little boy, we can do this! I'm determined to do everything I can to get through this.

Re: Hi, I'm new to all of this! [Re: bec293] #192814
08-04-2016 06:40 AM
08-04-2016 06:40 AM
Joined: Jun 2007
Posts: 10,500
PA
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ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Joined: Jun 2007
Posts: 10,500
PA
Welcome to OCF! Im so sorry you are going thru this. Being a single mom isnt easy, especially when going thru battling OC (oral cancer). Im a single mom too and it was definitely one of the most challenging things Ive done. Luckily for me my children were older so didnt require as much care.

Eating healthy is great but it may not be doable when doing rads. Make sure you discuss your new diet with your physician as some foods may not work with certain medical treatments. I will talk more about intake with you down the road. Just for now eat everything you can and if you can put on a couple pounds that could help with making it easier.

Since you are by yourself, you may need help with your son. Now is a good time to line up some help. Anyone who offers their assistance tell them when the time comes you will let them know what they can do. You may need someone to drive you to treatments or even someone to care for your son if needing hospitalization. It never hurts to be prepared.

Best wishes with everything.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Re: Hi, I'm new to all of this! [Re: bec293] #192815
08-04-2016 06:51 AM
08-04-2016 06:51 AM
Joined: Aug 2016
Posts: 2
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bec293 Offline OP
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bec293  Offline OP
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Joined: Aug 2016
Posts: 2
Hi Christine,

Thanks for your reply! I've been worried about how I'll feel after radiation starts.. and yes Im also trying to put weight on since I lost 7kg after surgery making my weight drop to an unhealthy weight.

It's tricky trying to find the best solution for my son. He has autism spectrum disorder and ADHD so he can be very difficult with new people. He's too anxious to put into a temporary child care centre (he'll likely have explosive meltdowns in the afternoons when he's back with me after being in an anxious state all morning), so I'm thinking maybe I'll hire a part time nanny who can tag along and help with him while he's with me.

Taxis are cheap here so I use those to get to hospital. I've also found a supermarket that does online orders and delivery so that will help too.

Re: Hi, I'm new to all of this! [Re: bec293] #192817
08-04-2016 08:38 AM
08-04-2016 08:38 AM
Joined: Oct 2012
Posts: 1,233
Toronto, Canada
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gmcraft Online
Assistant Admin
gmcraft  Online
Assistant Admin
Patient Advocate (1000+ posts)
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Joined: Oct 2012
Posts: 1,233
Toronto, Canada
Welcome to the forum. Before I retired i had the opportunity of working with a number of parents with children on the autistic spectrum. I have the greatest admiration for them knowing what they are up against on a daily basis.

It can't be easy for you to have to go through surgery and radiation and care for the little guy. Is there a child care centre at your hospital? Can you leave your son and the nanny there while you wait for and get your treatment session? It will keep your son entertained while he is waiting for you.

I bought several cookbooks for cancer patients when my husband was in treatment. Unfortunately, I could use only maybe one or two recipes as John had so much difficulty with his swallowing that I couldn't cook much from the books. i would suggest consulting a dietitian at your hospital. They will give you suggestions regarding what you need to eat and keep an eye on your weight during treatment. From the sounds of it, you seem to really understand the importance of nutrition during treatment. And that's half the battle won.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
Re: Hi, I'm new to all of this! [Re: bec293] #192821
08-05-2016 04:31 AM
08-05-2016 04:31 AM
Joined: Mar 2014
Posts: 286
Brisbane, Australia
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OzMojo Offline
"OCF Down Under"
OzMojo  Offline
"OCF Down Under"
Gold Member (200+ posts)
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Joined: Mar 2014
Posts: 286
Brisbane, Australia
Welcome to OCF Bec.


Cheers, Dave (OzMojo)
19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil.
31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014)
11August2014 PET/CT clear.
17July2019 5 years NED.

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