| | Joined: Jul 2016 Posts: 4 Member | OP  Member
Joined: Jul 2016 Posts: 4 | hello troylowe06 here reason for joining need answers about side effects 22 treatments in on 33 radiation thearpy tongue burns no taste castrol oil taste in mouth pariod gland removed 5-12-2016
troylowe06 pariod gland removed 5-12-16 stage 2 cancer rad. tx started6-27-16 33 total to be done
| | | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | | Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | Hi Troy,
Welcome to the forum. I'm sorry you have the need to be here, but I know the members of the forum will try their best to support you.
As you will probably hear from many, the effects of radiation may be different for different individuals though they do subside with time. Have you spoken to your radiation oncologist about the burning tongue? He/she may be able to give you some pain medication to help with the pain. If you have a Waterpik, rinsing your mouth with warm water and some magic mouthwash ( you can get this from your RO by prescription) on the lowest setting may help. You are entering the most challenging phase of your treatment, but soon you will see the light at the end of the tunnel.
Hopefully somebody who has had the same condition will be along soon with a post.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF, Troy! Im glad you have found our site to help you thru the rest of your treatments and recovery.
For most, the side effect start to appear during the last third of their treatments. This is when the tough MUST get going!!! If you havent already been rising your mouth try using one cup warm water with 1 tsp baking soda and 1 tsp salt. The salt could burn your sensitive mouth so its ok to cut it back or if necessary to omit it from the mixture. Just try your very best to have some salt in the concoction as it will really does help.
The very best thing you can do to help yourself get thru this as easy as possible is to focus on your intake. Every single day your daily minimums should be at least 2500 calories and 48-64 oz of water. If you can push for more it will definitely help. Even 3000 or 3500 calories every day isnt too much for this phase of your battle. Also the higher calories can play a huge role in helping with your recovery so continue it thru at least the first year post rads.
Hang in there!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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