| | Joined: Jul 2016 Posts: 85 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Jul 2016 Posts: 85 | I have been lurking here for many days (and a few all nighters) reading thousands of threads. I finished the chemo and radiation in July 2015 and I feel as though i have gotten through the " tunnel". I have learned so, so much by sitting here reading. i have laughed and cried while reading many of these posts and felt so close to everyone. I am missing some of the old timers such a Charm, Gabe, and EZjim, I felt as though I knew them and would look forward to their next post. I am so fortunate to have my incredible husband of 42 years by my side through all of this as well as 3 grown children who have been amazing. I am still using my gtube for feeding but just yesterday had a modified barium swallow test and passed so we celebrated by going out to eat. The soup was heaven after over a year of only ice water by mouth. I am experiencing a boat load of trouble with kidney stones now and wondering if they are caused by the liquid nutrition I have been on or to much protein ? ? I will move to one of the threads to explain more. I just want to thank you all for your help and guidance through these troubling times and hope that we can all share together. One of my biggest wishes is that i will be able to help someone else down this road.
Sept 2002 Rt breast cancer no chemo or radiation.
March 2015 Rt tonsil cancer - walnut size lump rt side neck.
March 2015 Scan, biopsy confirm
March 2015 Port, G tube placed, 10 teeth removed.
July 2015 completed 5 chemo/35 radiations
Sept 2015 Cat Scan all clear
July 2016 G tube, port still in place
Ive had Thyroid "graves disease" and Lupus for many years.
4 kidney stone surgeries past 3 mo with over 100 stones still there !
*** Update... Jo passed away 12/20/17 ... RIP Jo ***
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF! Its always great having another survivor join our ranks. Im sure your experiences will be of help to our members who are going thru treatments.
The 3 members you mentioned were dear friends of mine. I still miss them (and several others) very much. Charm, EzJim and Gabe all passed away well before their time. Their posts will continue to live on giving support to others who seek their wisdom.
Have you asked your doctors about the relation of your kidney problems to the chemo? One member comes to mind Paul, he ran into kidney failure. Hopefully he will see this and give his input soon.
Best wishes with your continued recovery.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 4 | Welcome, Jo! I just saw this after making a response on the one for kidney stone. I was writing here too, but my work was deleted after my iPad battery died out, but was pretty much the same info. Congratulations on passing the modified barium swallow!
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Jul 2016 Posts: 85 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Jul 2016 Posts: 85 | Thank you for the warm welcome. Wish we ALL didn't have to be here. Christine I have to admit that while reading post for weeks I got tired of hearing from you about how important nutrition is for all of us. But you were so, so right, I now know it is the very most important thing you can do for yourself. I will be making your magic shake (without the whey protein powder until i get the ok from the Doctor) and work on getting one down a day along with my regular liquid nutrition in the G tube. Keep preaching, you know we need it and thank you for being here to help us along !
Is the small support from Amazon just for the Vitamix purchase or can we go through OCF for anything we order on Amazon ? I order a lot on Amazon so I would like to go through here if it helps.
Still working on the kidney stone issues. I will be seeing a nephrologist soon.
Sept 2002 Rt breast cancer no chemo or radiation.
March 2015 Rt tonsil cancer - walnut size lump rt side neck.
March 2015 Scan, biopsy confirm
March 2015 Port, G tube placed, 10 teeth removed.
July 2015 completed 5 chemo/35 radiations
Sept 2015 Cat Scan all clear
July 2016 G tube, port still in place
Ive had Thyroid "graves disease" and Lupus for many years.
4 kidney stone surgeries past 3 mo with over 100 stones still there !
*** Update... Jo passed away 12/20/17 ... RIP Jo ***
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | I do sound like a broken record, don't I? Thank you for reading thru posts! That will help make you a strong advocate. By clicking on the Amazon box, prior to shopping on Amazon it will give OCF a small kick back for any purchase. Its not much, I think its up to 7% of the purchase goes to OCF. With lots of OCF members who shop on Amazon using the link it adds up to help cover some of the office utility bills every month. Some people bookmark the link and go back to click on it when they shop at Amazon. I always come back to the forum and click on the OCF's Amazon box then I shop Amazon. As far as the Vitamix goes, to order call the OCF office at 1.949.723.4400. By purchasing it thru OCF, it helps to fund our medical needs program for needy OC patients. Some patients have permanent significant eating problems after having OC. Many also face financial hardship making owning a Vitamix blender a luxury they can only dream of owning. OCF helps those who are both financially and medically needy get a Vitamix blender to help give them a way to have better nutrition. Keep us posted on your updates. Im interested in hearing is the stones are related. Best wishes!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Oct 2006 Posts: 383 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Oct 2006 Posts: 383 | AWESOME Jo! Congratulations on your celebration and keep experimenting and having the same good fortune! Praying you get the kidney stones addressed and worked out! All my Best. Steve
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
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