| | Joined: May 2016 Posts: 3 Member | | Member
Joined: May 2016 Posts: 3 | Been reading the posts on here since November of
2015 following tors surgery at university of Penn in Philadelphia pa
Many inspiring people on here - thank you
Anyone else here in treatment or been treated at
Penn and your experiences please ???
Many thanks !
Afw1964 | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 8 | Welcome to OCF! Its always great having survivors join our "family". Its even better when they are local to me  There are quite a few of us from this area and many who went to Penn.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: May 2016 Posts: 3 Member | | Member
Joined: May 2016 Posts: 3 | Christine ,
Are you from the Lehigh valley too ? | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 8 | Yes, I live in the Lehigh Valley
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jan 2006 Posts: 757 Likes: 2 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2006 Posts: 757 Likes: 2 | Welcome to OCF! I'm glad you decided to join the forum - great source of information and support. The forum posts are stored and contain a wealth of information. As a forum member, you can use the "search" function to help locate a particular topic you want to research. Also, you can read more about a particular members story by clicking on their username which will give you a list of their posts.
I'm also from the Lehigh Valley and I believe we already met on FB! I was treated locally and then when I had a recurrence went to Johns Hopkins. I had been to HUP and Fox Chase for second opinions. There are a few forum members who were treated at HUP (Penn).
Susan
SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2025 (ORN of lower jaw)
| | | | | Joined: Apr 2016 Posts: 4 Member | | Member
Joined: Apr 2016 Posts: 4 | Hi guys! I am from PA too! I live in Central PA, but I am from Pittsburgh and I go there monthly to visit my older parents and that is where I go for my doctors (as there are no good ones in central PA).
Is there a facebook group? I have not found one and I would love to join one?
Thanks,
Laurie | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 8 | Theres lots of members from our area. We all meet up at the OCF walks in Bethlehem and Andovery NJ every year. You're more than welcome to attend. Its an amazing experience meeting fellow survivors and caregivers. Only those who have walked this path first hand can truly understand just how vile this disease, the treatments and recovery can be. The Oral Cancer Foundation's facebook page is... OCF on facebook
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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