#19228 01-09-2006 06:12 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hi Lenny, my cancer on tongue also spread to two lymph nodes, I was diagnosed May 10, 2002, had surgery and 7 weeks radiation. I am doing well, even helping out in my Church office, it is so scary but there is light at the end of tunnel. Hang in there. Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#19229 01-09-2006 09:47 AM | Joined: Jan 2006 Posts: 107 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Jan 2006 Posts: 107 | Once again I am overwhelmed at the support that I have found here I only wish I had found this site earlier, now I will do my best to help others if I can. Going in for surgery , radical neck, on wed so I will be away from this site for a week or so, a few days in the hospital then I will be staying else where to recoup, I will be back around hopefully with good news and some support for others. | | |
#19230 01-09-2006 01:00 PM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Lenny
I just wanted to send you some good positive vibes for your surgery on Wednesday!
We look forward to hearing from you ... when you are on the road to recovery.
Take Care
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#19231 01-09-2006 05:57 PM | Joined: Jul 2005 Posts: 150 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jul 2005 Posts: 150 | Lenny, my father had tonsil cancer that meandered to a node. The surgery was a breeze. What was nerve racking is that they put him under first to biospy the primary. If it was positive, they weren't going to move ahead. Well, it was negative and his nodes were too. He was in the hospital for only 2 days. YOU WILL DO GREAT LENNY. It is so cliche but after what you've been through the surgery is nothing. Think positive, I will pray for you!
Dad Treated for T2N1M0 Tonsil Cancer August 2005. 35 IMRT radiation, 3 doses Cisplatin. Selective Modified Neck Dissection November.
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#19232 01-10-2006 07:10 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi Lenny,
Since you are looking for a long term survivor, I have mets to one lymph node in 1997 and am still around 'kicking butt'. That's what the neck dissection is about. Getting rid of it before it can do harm. You will probably need come PT a few weeks after surgery. You also will need to support your arm for a few weeks after the surgery so you don't get a drag on the shoulder while it is weak.
We'll all be thinking of you on the 11th.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#19233 01-10-2006 07:57 AM | Joined: May 2004 Posts: 218 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2004 Posts: 218 | Len,
I was in the same boat about 2 years ago. Exactly.
Sounds like you are on the right path with treatment.
The worst is over, believe me.
I am eating just about anything I want now.
Still have trouble with oranges real sour. Also, I need to stay away from real real hot stuff like Thai food etc. Other than that its all good.
Dry mouth, oh yea. Water bottle with me at all times, for sure. Glad to be alive, you betcha.
Look at the positive. Enjoy every breath.
Drop me a line if you need to talk.
Robert.
SCC 1.6cm Right Tonsil 10/3/03, 1 Node 3cm, T1N2AM0, Tonsil Removed, Selective Neck Disection, 4 Wks Induction Chemo (Taxol,Cisplatin), 8 Weeks Chemo/Radiation (5FU,Hydroxyurea,Iressa), IMRT x 40, Treatment Complete 2/13/04.
41 Years Old At Diagnosis
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#19234 01-11-2006 06:24 AM | Joined: Nov 2005 Posts: 306 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2005 Posts: 306 | Lenny, Good luck with your surgery. Let us know how you are doing. I hope your recovery is speedy and painless. Be strong. Tom
SCC BOT, mets to neck, T4.
From 3/03: 10wks daily multi-drug chemo,
Then daily chemo with twice daily IMRT for 12 weeks - week on, week off. No surgery. New lung primary 12/07. Searching out tx options.
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