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| | Joined: Dec 2014 Posts: 55 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Dec 2014 Posts: 55 | If you are still going the route of Erbitux the side effects can vary. Most people including myself had a lot of skin issues. Really dry skin and some pretty bad rashes. The rash was all over the body and was very uncomfortable. I was prescribed some gels and stuff that helped some. Also I had issues with my fingertips and toes. They would get really sensitive and cut open easily. I ended up using the liquid bandage stuff so that I could still use my fingers to grab stuff. Other than that, I didn't really have any more side effects. I am sure that there are some other people with different effects than me. I would look into Opdivo. I am hoping to start that soon. Still waiting on approval.
Jeff - 41yrs old/previous smoker
SCC buccal mucosa/jaw bone Stage 4
Nov '14 Partial Mandibulectomy with fibula flap, neck dissection
Jan '15 Rads x35 Cisplatin x2
Apr '15 PET/CT concerning area Follow up MRI no mass.
July '15 PET/CT 11mm nodule in right lower lobe the lung.
Oct '15 PET/CT right lung nodule 3cm mass also new left lung nodules
Nov '15 erbitux
Mar '16 CT tumors are growing again, waiting on next step
June'16 hospice had 3 Opdivo infusions trying to regain health
| | | | | Joined: Mar 2016 Posts: 7 Member | | Member
Joined: Mar 2016 Posts: 7 | Dear Jeff, Thank you for your reply. I will certainly keep your advice in mind. Yes, we are going ahead with Erbitux. I'm sorry that you had to go through a lot of skin related side effects. Best wishes, Ruchi
CG for my father,65, diabetic.
Primary: squamous carcinoma of right upper gingiva. Oct'15.
Surgery+RT, primary clear.
Secondary: both lungs. Mar'16.
About to start treatment for secondary.
| | | | | Joined: Jan 2013 Posts: 1,294 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,294 Likes: 1 | Hi Ruchi,
I wish your dad well on his treatment plan. I think in general if cancer has metastasized in a distant area, the general prognosis is not so good. In that the docs generally won't state there is a cure. So if not curable but treatable, it falls with the palliative label. I'm sure no doctor but that is the impression I get of the use of the terms curable and palliative.
Don
Male, 1955
Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
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