| | Joined: Jun 2015 Posts: 1 Member | OP  Member
Joined: Jun 2015 Posts: 1 | I was wondering if anyone had any information for a doctor in the Orlando area, or nearby, to make a palatal obturator. I am working with a patient who had a resection of his hard palate and he has been struggling to find someone to make him an obturator to block the hole. It is effecting his speech and swallowing and is very frustrating. I have called many oral surgeons and prosthedontists in the area and none of them provide this service. Please let me know if anyone has any information in regard to this service. | | | | | Joined: Dec 2010 Posts: 5,264 Likes: 4 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 4 | check with your local CCC perhaps and ENT of patient services person can give you a name.
have a great day
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | I would also check with the patients insurance company. They should have a list of specialists who offer this service.
PS.. Maybe someone affiliated with Moffitt?
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Oct 2006 Posts: 383 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Oct 2006 Posts: 383 | I am starting the process for a prosthetic for the soft palate and my entire team were all over it, setting everything up for me. Like Cheryl said, I would think that someone on your team, or as Christine stated insurance carriers would have referrals. I have learned as I went through this process that apparently there aren't a lot of folks practicing in some of these type fields, although this seems a little more straight forward to me. All my best!
Steve
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
| | | | | Joined: May 2014 Posts: 8 "OCF Canuck" Member | | "OCF Canuck" Member
Joined: May 2014 Posts: 8 | does anyone who reads this know of someone who had undergone reconstructive surgery to remove obturator from hard palate? or maybe an MD that is specializing in this area?
thanks
Gabs
SCC 02/13 hard palate Stag III, age63
surg 3/13
obturator
2016 Thinking of reconstruction
BE WELL!
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