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Re: The Watchful Peace [Re: TheHellion] #191801
02-19-2016 02:20 AM
02-19-2016 02:20 AM
Joined: Dec 2014
Posts: 55
California
S
someguyjeff Offline
Supporting Member (50+ posts)
someguyjeff  Offline
Supporting Member (50+ posts)
S

Joined: Dec 2014
Posts: 55
California
I am praying and rooting for you!!! Thank you so much for these updates as most likely soon, I will be attempting my own journey of immunotherapy trials and tribulations. Ill find out soon if the Erbitux is still working. Two weeks ago I spent a few days in the hospital for another recurring neck infection and immediately after my Erbitux infusion last week I went on a solo trip driving over 4000 miles round trip with a utility trailer to load up some of my parents belongings in order to help them with their move. Did all this while on IV push antibiotics through a PICC line, done in the cab of my truck at rest stops or truck stops. Lucky I never was hassled by the cops thinking I was pushing some other drugs through my veins. ha I also found one of the titanium screws that should be in my jaw holding something in now sticking out from under my chin a few millimeters while i was driving. seems that hardware has failed and is being pushed out of my body. Will need to have that looked at soon. I am trying to not let this slow me down too much. There are days upon days that I am stuck on the couch, but the people here show me so much strength that I have to give it my all when I can. Back to Erbitux infusion tomorrow and hope for the best. Thank you Hellion and Thank you everyone else who is fighting or taking care of those who do.


Jeff - 41yrs old/previous smoker
SCC buccal mucosa/jaw bone Stage 4
Nov '14 Partial Mandibulectomy with fibula flap, neck dissection
Jan '15 Rads x35 Cisplatin x2
Apr '15 PET/CT concerning area Follow up MRI no mass.
July '15 PET/CT 11mm nodule in right lower lobe the lung.
Oct '15 PET/CT right lung nodule 3cm mass also new left lung nodules
Nov '15 erbitux
Mar '16 CT tumors are growing again, waiting on next step
June'16 hospice had 3 Opdivo infusions trying to regain health
Re: The Watchful Peace [Re: TheHellion] #191957
03-08-2016 04:45 AM
03-08-2016 04:45 AM
Joined: Mar 2014
Posts: 286
Brisbane, Australia
O
OzMojo Offline
"OCF Down Under"
OzMojo  Offline
"OCF Down Under"
Gold Member (200+ posts)
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Joined: Mar 2014
Posts: 286
Brisbane, Australia
We're right there with you mate.


Cheers, Dave (OzMojo)
19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil.
31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014)
11August2014 PET/CT clear.
17July2019 5 years NED.
Re: The Watchful Peace [Re: TheHellion] #191963
03-09-2016 08:02 PM
03-09-2016 08:02 PM
Joined: Dec 2014
Posts: 55
California
S
someguyjeff Offline
Supporting Member (50+ posts)
someguyjeff  Offline
Supporting Member (50+ posts)
S

Joined: Dec 2014
Posts: 55
California
been a while since we've heard from you. I pray everything is going ok. Feel free to message me on here and/or ask for personal ways of contact. I am close to right behind you. Keep up the fight!!!


Jeff - 41yrs old/previous smoker
SCC buccal mucosa/jaw bone Stage 4
Nov '14 Partial Mandibulectomy with fibula flap, neck dissection
Jan '15 Rads x35 Cisplatin x2
Apr '15 PET/CT concerning area Follow up MRI no mass.
July '15 PET/CT 11mm nodule in right lower lobe the lung.
Oct '15 PET/CT right lung nodule 3cm mass also new left lung nodules
Nov '15 erbitux
Mar '16 CT tumors are growing again, waiting on next step
June'16 hospice had 3 Opdivo infusions trying to regain health
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