Previous Thread
Next Thread
Print Thread
Page 16 of 16 1 2 14 15 16
Joined: Dec 2014
Posts: 55
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Dec 2014
Posts: 55
I am praying and rooting for you!!! Thank you so much for these updates as most likely soon, I will be attempting my own journey of immunotherapy trials and tribulations. Ill find out soon if the Erbitux is still working. Two weeks ago I spent a few days in the hospital for another recurring neck infection and immediately after my Erbitux infusion last week I went on a solo trip driving over 4000 miles round trip with a utility trailer to load up some of my parents belongings in order to help them with their move. Did all this while on IV push antibiotics through a PICC line, done in the cab of my truck at rest stops or truck stops. Lucky I never was hassled by the cops thinking I was pushing some other drugs through my veins. ha I also found one of the titanium screws that should be in my jaw holding something in now sticking out from under my chin a few millimeters while i was driving. seems that hardware has failed and is being pushed out of my body. Will need to have that looked at soon. I am trying to not let this slow me down too much. There are days upon days that I am stuck on the couch, but the people here show me so much strength that I have to give it my all when I can. Back to Erbitux infusion tomorrow and hope for the best. Thank you Hellion and Thank you everyone else who is fighting or taking care of those who do.


Jeff - 41yrs old/previous smoker
SCC buccal mucosa/jaw bone Stage 4
Nov '14 Partial Mandibulectomy with fibula flap, neck dissection
Jan '15 Rads x35 Cisplatin x2
Apr '15 PET/CT concerning area Follow up MRI no mass.
July '15 PET/CT 11mm nodule in right lower lobe the lung.
Oct '15 PET/CT right lung nodule 3cm mass also new left lung nodules
Nov '15 erbitux
Mar '16 CT tumors are growing again, waiting on next step
June'16 hospice had 3 Opdivo infusions trying to regain health
Joined: Mar 2014
Posts: 286
"OCF Down Under"
Gold Member (200+ posts)
Offline
"OCF Down Under"
Gold Member (200+ posts)

Joined: Mar 2014
Posts: 286
We're right there with you mate.


Cheers, Dave (OzMojo)
19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil.
31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014)
11August2014 PET/CT clear.
17July2019 5 years NED.
Joined: Dec 2014
Posts: 55
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Dec 2014
Posts: 55
been a while since we've heard from you. I pray everything is going ok. Feel free to message me on here and/or ask for personal ways of contact. I am close to right behind you. Keep up the fight!!!


Jeff - 41yrs old/previous smoker
SCC buccal mucosa/jaw bone Stage 4
Nov '14 Partial Mandibulectomy with fibula flap, neck dissection
Jan '15 Rads x35 Cisplatin x2
Apr '15 PET/CT concerning area Follow up MRI no mass.
July '15 PET/CT 11mm nodule in right lower lobe the lung.
Oct '15 PET/CT right lung nodule 3cm mass also new left lung nodules
Nov '15 erbitux
Mar '16 CT tumors are growing again, waiting on next step
June'16 hospice had 3 Opdivo infusions trying to regain health
Page 16 of 16 1 2 14 15 16

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,916
Newest Members
Chezzter2, Balvertos, Lainie, Wendita1717, GailC
13,254 Registered Users
Forum Statistics
Forums23
Topics18,220
Posts197,069
Members13,255
Most Online875
Dec 21st, 2024
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5