| | Joined: Nov 2015 Posts: 18 Member | OP  Member
Joined: Nov 2015 Posts: 18 | Something clicked. I'm not sure what, and it really doesn't matter what it was. But as of yesterday, My husband has finally agreed to go through with the biopsy!!! Surgery is tomorrow AM! Positive thinking and lots of prayers for negative results!! Thank you everyone for your thoughts, prayers and personal messages. I will keep fighting for my husband, and our future. I will update the board as soon as I can.
Thank you all for being here!!!
Wife of a stubborn survivor
Scared of the unknown
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 4 | Good luck with everything tomorrow!
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | | "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | That's really good news. A biopsy is a must. I so hope that this is negative and you don't have to persuade him to do any more.
Keeping all my fingers crossed,
Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
| | | | | Joined: Apr 2015 Posts: 91 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2015 Posts: 91 | Glad to read this today!! Good luck with everything! Denise
Biopsy tongue 3/24/15
Diagnosis SCC tongue/floor of mouth
Partial glossectomy, resection and right neck dissection done
4/22/15
T2aN0M0
05/01/2015-no further treatment indicated at this time,
monthly check ups for two years
| | | | | Joined: Jan 2013 Posts: 1,294 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,294 Likes: 1 | Big checkpoint to pass. Hope all goes well all worry is for not. don
Don
Male, 1955
Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
| | | | | Joined: Nov 2015 Posts: 18 Member | | OP Member
Joined: Nov 2015 Posts: 18 | Good morning everyone, at least from where I am. The biopsy from surgery yesterday didn't give the results we wanted. The cancer is back. It was a very rough day. We are home, and he is resting. Eating is really hard, they took more of his tongue to ensure clear margins. It is amazing how much my memory has flooded back from the first surgery 5-years ago? Not sure what's next, PET scan to make sure it hasn't spread I think. I am pretty sure radiation is next on the list too, but all depends on what he's willing to do. I am sure I will be back on here a lot more now...
Thank you all for your thoughts, prayers and support.
Wife of a stubborn survivor
Scared of the unknown
| | | | | Joined: Jan 2006 Posts: 757 Likes: 2 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2006 Posts: 757 Likes: 2 | Very sorry to hear the cancer is back. I had a recurrence 5 years after first surgery (also had RT). My cancer was also in my tongue. I went for multiple opinions when I had a recurrence, ended up with 2 surgeries that year, and then a 4th when I was diagnosed with dysplasia a year later, but I've been in the NED category since 2011.
As others have stated, surgery, RT, and chemo are really the only options to get rid of this cancer and I hope you and your husband's doctors are able to convince him to seek conventional treatment. Wishing you both the best!
Susan
SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2025 (ORN of lower jaw)
| | | | | Joined: Jan 2013 Posts: 1,294 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,294 Likes: 1 | I'm sorry to hear the news nobody wants to hear. Once you get past the shock, you have a jump on getting through the next months. Having the first hand experience and support here you can get prepared to deal with the tests results, decisions. Please do stay close here. Don
Don
Male, 1955
Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
| | | | | Joined: Mar 2014 Posts: 110 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2014 Posts: 110 | Early detection will help, and it will increase your options. This is difficult and frightening, but try to stay calm, gather your resources and recommendations, and remember that many exciting things are happeining in this field.
The Hellion
SCC Base of Tongue
Diagnosed 3/5/2014 T2N2C
PEG Installed 3/19/2014
Chemo/Rad 3/27/2014
1x Cisplatin, 4+ TaxoCarboplat + 33 * 70 gy
Chemo FINISHED 5/5/2014
Rads FINISHED
PEG tube removed 10/08/14
Back to work 4 Aug full time
1/19/15 - diagnosed mets to lungs
7/17/15 began Pembrolizumab clinical trial demitted October 2015
1/14/16 began Tremi-MEDI trial
-This far, no further! On ne passe pas!
**update** passed away 3/26/16 RIP, you will be missed by many
| | | | | Joined: Jan 2016 Posts: 4 Member | | Member
Joined: Jan 2016 Posts: 4 | So sorry to hear it is back. But have hope and strength! I know it seems grim, especially for your husband. It's daunting with the pain and discomfort let alone the bills and psychological issues. But at the end of the day, if you make the simple decision you want to live, then I think the rest comes along a little easier. It sure sounds like he has a supportive wife and (I can say from experience) that's a huge help. Good luck! Sending positive vibes from North Carolina. Peace...
Matthew 44 years old
Former smoker
12/09 diag Stage IV SCC Nasopharyngeal
1/10 6 rnds cisspl/35 rad
PEG tube 6 mo
Xerostmia (permanent)/Loss of taste/smell 6 mos+
Clear PETs 2 years
Clear MRI 2 more years
12/14 HPV pos SCC left tonsil
1/14 Tonsillectomy on left + one for clr mrgns
3/14 Removal left lymph nodes
Ongoing-check ups and screening at ENT
QOL overall good. New normals, but happy to be alive and learning more everyday to overcome fear and enjoy my life and my family.
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