I have been following your posts. I will be thinking of you, pulling for and praying for you. I am hoping the Opdivo proves to be successful. It must be hard to go through all of this, but know that so many people are thinking of you and wishing the best. Denise

Thought I would give a quick update on where I am at with things. I am currently as of last week on hospice. The last 3 months have been down hill with the coughing and pain increasing. I was able to get three Opdivo infusions in before switching to hospice. I have checked off the boxes in my bucket list such as getting my youngest daughter to Floriday for her cheer finals. and then recently my oldest daughter to Vegas for her barrel races finals. They both did amazing.

Somewhere during the end of Florida at the end of April, I started coming down hard with upper res. problems. I was coughing so much and had a lot of pain in my lungs. at the end I was also coughing up blood. My doctors couldn't define any pneumonia but had my antibiotics and started my Opdivo. The coughing came and went and the Opdivo gave me mostly just fatigue the first week after. By the second infusion of Opdivo I was starting to get a lot of pain in my chest and they said it could be the Opdivo breaking up the tumors. The week preceding the third infusion I quickly went down hill. I ended up in the ER. I couldn't balance myself, walk, speak clearly, and my memory was shot. The last few days I was basically in a coma at home. I didn't remember anything and I couldn't speak clearly. It was like I just came out of a dream long to speak about the dream and went back to sleep. I hadn't eaten or drank in three days, and I couldn't hold my urine long enough to make the bathroom.

They determined I was too sick to receive any more Opdivo. I decided to sign up for hospice to get my strength to hopefully get another infusion someday. I can say one thing. I do feel better. I am gaining weight and my cough is virtually gone. I was on deaths bed. within hours. in a hospital. I am glad to feel better and have a possible chance at getting some more Opdivo down the road. If not, i am glad that I didn't die in the hospital way from my little girls.

If any of you have any suggestions or know any other way to go about this, I am open to suggestion.

Jeff, I'm so pleased you recovered nicely in the Hospice. You sound good. It would be great to think it was the Opdivo making you feel worse before you felt better. Sounds as if they are taking good care of you.

Best wishes.