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| | Joined: Jan 2016 Posts: 1 Member | OP  Member
Joined: Jan 2016 Posts: 1 | Was diagnosis with tongue cancer back in May 2015. Had sugery june 2015 had 2/3 of my tongue removed. Have a peg tube for my feedings. had 33 treatments of radiation and 2 treatments of chemo. Was in and out of the hosptial with nausea before getting my feeding pump was doing bolus feeding and couldn't toerate it. Feeeling great now. Weight stable getting my strenght back slowly. Exercising some to get my strenght back. Having my first PET scan this month am a little neervous about it. But I have great doctors at MD Anderson. Iam just joining this site of of today. | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 8 | Welcome to OCF, Reita! Its always great having another survivor join our ranks! You have found the best place to get info and support. Best wishes with your continued recovery 
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | | "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | Sounds like you are doing well now Reita. Scanxiety is a problem we all have. Both Patients and their Caregivers. I will keep all my fingers and toes crossed for a great outcome.
Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
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