#19148 12-20-2005 03:37 PM | Joined: Dec 2005 Posts: 1 Member | OP Member Joined: Dec 2005 Posts: 1 | Hi I do not know how to do this on line talk I have never done this before. I have some questions and need help. My cancer treament has been at UAB and The Universiry of Alabama so I am a tad intimedated to ask questions. I would really like to know why I have all the sores in my nose and why my face burnes when I sweat? | | |
#19149 12-20-2005 06:34 PM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Oct 2016 Posts: 284 | Genie,
Don't feel intimidated. These people are the nicest and most patient people there could be. I think the first thing people will ask you in regards to your question is that they will need a little more information in regards to the treatment that you have received thus far and to what type of cancer you have.
I am sure there are many people that can answer any questions you may have and that you will find the friendliest most helpful caring people here.
Take care, Dani
Originally joined OCF on 12/12/03 as DaniO or Danijams Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04 surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#19150 12-20-2005 07:08 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Mar 2003 Posts: 1,384 Likes: 1 | Welcome Genie, I am sure people would like to help. Please tell us more about the treatments you recieved and the location of your cancer. Don't be intimidated, we only bite once and a while.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#19151 12-21-2005 04:33 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2003 Posts: 928 | Hello Genie Don`t be afraid ...we have all had to start off somewhere.... and we really will try to help when we know a little bit more about your particular cancer. Take Care Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#19152 12-21-2005 04:40 AM | Joined: Oct 2005 Posts: 1 Member | Member Joined: Oct 2005 Posts: 1 | Hi Genie, Welcome to the club nobody wants to be able to join!! If you go to the search section at the top of the page and type in the word "sweats" or something else you want to know about, you will get to read a LOT of posts from people with the same or similar problems. Maybe you wil get your questions answered by reading some of these other posts, as well as the people who answer your post. It's a great way to get more information, and you will also see that everybody here started out the same as you. We all had questions, we were/are all a little scared. You are not alone!
Caregiver to wife with SCC Left Lateral tongue T2N0M0
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#19153 12-22-2005 04:18 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2003 Posts: 1,163 | Hello Genie,
Ask any question you can think of and someone will reply. Please fill us in on what, when and where your cancer was and treatment received.
Welcome again, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#19154 01-02-2006 06:12 AM | Joined: Jan 2005 Posts: 191 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Jan 2005 Posts: 191 | Well, I can say I too have the occasional "sores in my nose" Depending on what your treatment has been, my nose sores perhaps stem from the side effects of Iressa that I'm currently on. One of the side effects from Iressa is acne. According to the doctors, the more effective it is for you, the more side effects you have. All my acne is connected to hair folicles. The blisters and sores on my neck were all connected to hair folicles. Now that treatment is behind me, I still get "attacks" on my face, back and nose.
Nothing worse than having pimples INSIDE your nose, but compared to other things, I view it as minor.
Jen | | |
#19155 01-02-2006 09:44 PM | Joined: Nov 2005 Posts: 306 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2005 Posts: 306 | Genie, Sorry to have you among us, but we are many, and we have learned alot about our kind of cancer here. There aren't any stupid qustions about cancer, or fear, or treatment - so don't hold back. Many here will identify with you and your situation, and many will reach out to you to help. Tell us more about your experience and what they are doing to help you. Tom
SCC BOT, mets to neck, T4. From 3/03: 10wks daily multi-drug chemo, Then daily chemo with twice daily IMRT for 12 weeks - week on, week off. No surgery. New lung primary 12/07. Searching out tx options.
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#19156 01-03-2006 05:12 PM | Joined: Mar 2002 Posts: 4,912 Likes: 53 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,912 Likes: 53 | I have emailed genie, telling her that many people have answered her post and that if she is having trouble figuring out how to work the board, I could help her on the phone. She has not returned my email.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
#19193 01-02-2006 06:12 AM | Joined: Jan 2005 Posts: 191 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Jan 2005 Posts: 191 | Well, I can say I too have the occasional "sores in my nose" Depending on what your treatment has been, my nose sores perhaps stem from the side effects of Iressa that I'm currently on. One of the side effects from Iressa is acne. According to the doctors, the more effective it is for you, the more side effects you have. All my acne is connected to hair folicles. The blisters and sores on my neck were all connected to hair folicles. Now that treatment is behind me, I still get "attacks" on my face, back and nose.
Nothing worse than having pimples INSIDE your nose, but compared to other things, I view it as minor.
Jen | | |
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