| | Joined: Sep 2013 Posts: 6 Member | OP  Member
Joined: Sep 2013 Posts: 6 | Hi everyone, I had a radical forearm free-flap/reconstruction and neck dissection done 2.5 years ago. Luckily, I needed no further treatment. I have been numb in the jaw/neck area ever since. 2 weeks ago, I have started to regain feeling. When I press on that side of my tongue, I can feel it all the way down my neck. I guess it's a good to regain feeling but I am panicking. I already made an app to see my doctor. Has this happened to anyone else? Could this be nerve damage? Happy 27th Birthday to me! Couldn't bring in the new year without a quick trip down google lane (google is the worst). That's why I decided to finally post here  Thank you! -Katie
Last edited by kbriganti; 11-04-2015 08:51 AM.
Cancer found on back right side of my tongue in March 2013. Non-smoker and very light drinker. Tumor removed, reconstruction & partial neck dissection in April 2013. Stage 1. No chemo & no radiation.
| | | | | Joined: Nov 2009 Posts: 644 Likes: 1 "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) | | "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts)
Joined: Nov 2009 Posts: 644 Likes: 1 | Look, I have no medical background but it sounds good to me. I was told any return of feeling to my chin and lip would take two years. Hope you have a happy appointment.
Happy Birthday too!
1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
| | | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,293 Likes: 1 | Hi Katie,
Sounds like a good thing. You have senses returning. I'd not worry but the doctor hopefully says congrats to you.
Don
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 4 | Happy Birthday, Katie! I hope your ENT visit eases any concerns.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
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