| Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | Yes, I'm finished with treatment Delly. My last date was 1/30/14 with Proton Therapy and Carboplatin, and all my scans, 2 PET/CT, CT, and 2 MRI have been clear since. I ran out of the allotted space, so not everything is listed, and abbreviated many items. If you have any questions, explanations let me know.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Mar 2014 Posts: 79 "OCF across the pond" Supporting Member (50+ posts) | "OCF across the pond" Supporting Member (50+ posts) Joined: Mar 2014 Posts: 79 | Hi Delly, sorry to hear about your dad, been re reading your posts , thank god for the recent positives. Not posted myself for a bit as my dad has just been diagnosed with gastro oesophageal cancer , I'm devastated. Think I'm taking this news worse than my own diagnosis. He too will be treated at the Christie. Thinking of you and your dad ... Hugs xxx
Di 47 none smoker / drinker
T4 SCC left tonsil 1 Cistplatin,30 RAD finished treatment on 4/12/2013 Trismus First MRI scan appears clear TX NG tube 9 weeks acute vommiting, syringe driver 9weeks 2 month checks | | | | Joined: Mar 2015 Posts: 71 "OCF across the pond" Supporting Member (50+ posts) | OP "OCF across the pond" Supporting Member (50+ posts) Joined: Mar 2015 Posts: 71 | So sorry to hear about your dad that such sad news and I understand exactly how you feel it's heartbreaking that they have to go through all this when there older x I hope everything goes ok for him and keep strong xxx That's good news for you Paul I'm glad everything clear I think it's time it have you a break xx
Father 60 years old Diagnoised oc jan 15 Peg fitted 27/2/15 Full tongue glossectomy reconstruc surge , Lymph nodes and glands out 5/3/15 Rt 14/5/2015
| | | | Joined: Mar 2014 Posts: 79 "OCF across the pond" Supporting Member (50+ posts) | "OCF across the pond" Supporting Member (50+ posts) Joined: Mar 2014 Posts: 79 | Thanks Delly , time to pull that last bit of strength out of the bag , I'm sure it's lurking in there somewhere. Awaiting the MDT meeting then see what the treatment plan is , it's all so horribly familiar , not quite ready to be here again , and I'm pretty sure your not either. Xx
Di 47 none smoker / drinker
T4 SCC left tonsil 1 Cistplatin,30 RAD finished treatment on 4/12/2013 Trismus First MRI scan appears clear TX NG tube 9 weeks acute vommiting, syringe driver 9weeks 2 month checks | | | | Joined: Mar 2015 Posts: 71 "OCF across the pond" Supporting Member (50+ posts) | OP "OCF across the pond" Supporting Member (50+ posts) Joined: Mar 2015 Posts: 71 | I don't no how much strength is left in there :(( dad having op 8th July it's taking the lump and then using muscle and skin from his chest x might have to have breathing tube but hoping not as he really struggled with that last time but they said where the lump is he might not be able to lift his arm up also the cancer may grow back as it's very aggressive :((( I feel so sad for him and they say it all as though it's nothing  I no it's there job and to them they just get the cancer out and don't really care how much of your face they leave but I can just picture him now in recovery and feel like I want to hide :((( I feel my job is to make him better but I no control over anything x his face is so swollen his lips are massive an sore the radiation is still working but he going through this now for nothing because it didn't even get rid of the cancer :(( xx feeling so helpless at the moment xx
Father 60 years old Diagnoised oc jan 15 Peg fitted 27/2/15 Full tongue glossectomy reconstruc surge , Lymph nodes and glands out 5/3/15 Rt 14/5/2015
| | | | Joined: Nov 2009 Posts: 644 Likes: 1 "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) | "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) Joined: Nov 2009 Posts: 644 Likes: 1 | That is terrible, Delly. Much love to your father. i know what you mean about matter-of-fact surgeons and the feeling that everything is out of your control. Are you receiving counselling? Does your father have a therapist or someone like that from the Cancer Society?
Best wishes Maureen
1996, ovarian cancer surgery + cisplatin and taxol. September, 2007, SCC of left lateral tongue. Excision. October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT. February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | Take one day at a time Delly. I had the pectoral flap with my neck dissection for recurrent neck cancer. It's to protect the carotid artery, and in my case, to do reirridation. I did fine with lifting my arm afterwards, did PT, although it was slightly more limited. I hope your husband has even better results.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Mar 2015 Posts: 71 "OCF across the pond" Supporting Member (50+ posts) | OP "OCF across the pond" Supporting Member (50+ posts) Joined: Mar 2015 Posts: 71 | Hi all sorry not been on x quick update operation Saturday in praying this one works  x none of us have any counciling and nobody comes to see dad we seen McMillan nurse at clinic but she hopeless , we have recently found a lady who comes to see my dad 2 times a week but nobody has pit us in contact with anyone she is a lady who we came across by my auntie cleaning for her friend x she works at spring hill hospice and she has sorted some things for dad x every week we go hospital we tell them about the saliva every week they say ok we can try things but nothing got done this lady is trying some tablets so it's as easy as that and nobody helped ! Xx hope everyone doing ok xx
Father 60 years old Diagnoised oc jan 15 Peg fitted 27/2/15 Full tongue glossectomy reconstruc surge , Lymph nodes and glands out 5/3/15 Rt 14/5/2015
| | | | Joined: Nov 2009 Posts: 644 Likes: 1 "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) | "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) Joined: Nov 2009 Posts: 644 Likes: 1 | Hi Delly. The woman who is helping your father sounds promising but I really think you need more help. My dentist told me that botox injections in some saliva glands can reduce excess saliva. I have no idea if that is relevant but I just want to help. I just wish a social worker or cancer nurse or what we call a district nurse could come and check your dad frequently.
Best wishes!
1996, ovarian cancer surgery + cisplatin and taxol. September, 2007, SCC of left lateral tongue. Excision. October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT. February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
| | | | Joined: Mar 2015 Posts: 71 "OCF across the pond" Supporting Member (50+ posts) | OP "OCF across the pond" Supporting Member (50+ posts) Joined: Mar 2015 Posts: 71 | Or thankyou yes I think this lady is going to help dad she said there will be nurses coming she will make sure if it  x Botox was mentioned so that's a possibility if these tablets are no good x I think we will get help now she seems to be pushing for it even just visiting him as he lives alone so gets fed up is go every day but sometimes only sees me for days my brother doesn't go down I've said my piece but I can't force them my sister comes couple times a week I just don't no how they can not go down it's just part of my day now and I couldn't not see him x is everything ok with you now x are you able to eat and drink is all your scans clear xx
Father 60 years old Diagnoised oc jan 15 Peg fitted 27/2/15 Full tongue glossectomy reconstruc surge , Lymph nodes and glands out 5/3/15 Rt 14/5/2015
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