| Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | I'm sorry to hear this, Delly. It's unusual that cancer will grow during radiation, it usually shrinks, although there can be some inflammation of lymphatics, and as said, is not a good indication. I had tumors pop up twice in the neck while waiting for different cancer surgeries, which were removed with the other cancer thankfully, but not during treatment, which could have possibly happened if they weren't found in time. If may or may not be a lymph node, as some were said to have been dissected, not sure of type though, and what levels, and I have found as far as myself, not all are always removed, and had several found with each dissection (5) I had, and being there are so many in the neck, around 300, mostly microscopic, but everyone is different in that amount, and location. As far as it not being a lymph node has happened to me. After a neck dissections, radiation, even surgery, cancer finds an alternate route if the lymphatic flow is disrupted, so cancer can travel anywhere, usually the weakest link. On the other hand, the tumor can be radio resistant from a number of things, the neck receives a lower radiation dosage usually than the primary, can be out of the radiation field, etc. I'm not sure what the doctors may do. It sounds like the current radiation therapy is not finished yet? Maybe they will do another simulation, treatment plan, and give higher dosage to this new cancer, and finish the current radiation treatment, then do a neck dissection, possibly add chemo as a radio sensitizer. They can possibly stop radiation, do a dissection, but that has risk of tumor regeneration, and incomplete or delay in further radiation treatment. Cheryl mentioned IORT and Proton Therapy, which may be a possibility, not sure though, plus the fact it may not be available in England. Brachytherapy is, I believe, and is used as a boost dose with IMRT radiation for HNC, so that may be an option maybe, and Cyberknife too. http://www.royalmarsden.nhs.uk/diagnosis-treatment/cancer/pages/head-neck.aspxI tried thinking of any possibilities, and hope the doctors come up with a good course of action, and know better than I do. Good luck with everything, ask any questions, and keep us posted.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Mar 2015 Posts: 71 "OCF across the pond" Supporting Member (50+ posts) | OP "OCF across the pond" Supporting Member (50+ posts) Joined: Mar 2015 Posts: 71 | Hello you sound like you've had a rough time  I bet you've give up hope so many time x dad had finished his radiation he has had a nodes removed and lymph glands so in not to sure it must of been in the surrounding tissue and has grown from there :(( he's going today but won't let me go with him but his friend going I think he can't cope with how upset we get :(( I really hope is confined to the lump and not spread he's been through do much as you have  cancer is such a creul disease xx
Father 60 years old Diagnoised oc jan 15 Peg fitted 27/2/15 Full tongue glossectomy reconstruc surge , Lymph nodes and glands out 5/3/15 Rt 14/5/2015
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | Good luck with the doctors. Maybe there will be better news of hope after the meeting.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | There are other options. England is quite good with regards to medicine just make sure he is being treated at a top hospital. Hopefully they are doing trials.Usually they are... hugs.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Mar 2015 Posts: 71 "OCF across the pond" Supporting Member (50+ posts) | OP "OCF across the pond" Supporting Member (50+ posts) Joined: Mar 2015 Posts: 71 | Hi all thankyou for your messages x it's good news well good news compared to what I thought x the lump is localised it's not spread and can be cut out and just radiation in that area  so so pleased with that result I really hope it works and he gets through it x they also checked his swallow with a stethoscope and she said it sounds as though you are swallowing and your lungs sound good which is even more good news x still not allowed to drink but he goes for a swallow test in few week after this operation :)) xx
Father 60 years old Diagnoised oc jan 15 Peg fitted 27/2/15 Full tongue glossectomy reconstruc surge , Lymph nodes and glands out 5/3/15 Rt 14/5/2015
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | Glad to hear the good news! I thought that's what they would do being radiation was finished, but still see no chemo/targeted therapy. Take one step at a time, and both of you will get through this. Curious as to the type of radiation, dosage, area radiated, when you have more details.
Good luck.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | That's soooo awesome... so happy for you...
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Mar 2015 Posts: 71 "OCF across the pond" Supporting Member (50+ posts) | OP "OCF across the pond" Supporting Member (50+ posts) Joined: Mar 2015 Posts: 71 | Thankyou I can't tell you how happy we are I really hope this works x I will update with more details Paul when I no , are you finished all treatment now ? I can't find the abbreviations so can't see what you've been through
Father 60 years old Diagnoised oc jan 15 Peg fitted 27/2/15 Full tongue glossectomy reconstruc surge , Lymph nodes and glands out 5/3/15 Rt 14/5/2015
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Delly, abbreviations are in the very first heading. Its the New Here, Read This First section in both the Posting Etiquette and Common Abbreviations threads. Its also included in the link I send every new member thru a PM (private message). ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | "OCF Kiwi Down Under" Patient Advocate (1000+ posts) Joined: Mar 2011 Posts: 1,024 | Delly, that is wonderful news on your Father. I hope the surgery is scheduled quickly . The swallowing sounds really promising too. Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT. PET 6/11 clear. R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in. March 2017 - 5 years disease free. Woohoo!
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