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Joined: Feb 2007
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Joined: Feb 2007
Posts: 176
My RO at Beth Israel suggested that I take 150 mg/day. All that I can say is that my taste is back to 100%. Can even eat spicey.


6-05, Left Tonsil-T1N2bM0 stageIVA, chemo(Cisplatin), radiation(6660cGy), neck disection, no PEG. HPV negative. (Doc suspects posit)
3-9-09 last of 30 HBO treatments.
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Did your RO mention how long it should take or when to stop taking the zinc?


SCC Stage IV
BOT primary
T2N2bM0
Cisplatin/5FU x 3
40 days radiation at 4 sites
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
PLS 02/13
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/
Osteoporosis 01/2018
Heart attack 06_2018

Living life LARGE with no quit in this guy!
Joined: Jul 2012
Posts: 3,267
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Posts: 3,267


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Feb 2007
Posts: 176
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Joined: Feb 2007
Posts: 176
I don't remember exactly but I think that I took the 150mg/day for about a year or until my taste fully came back. Good luck.


6-05, Left Tonsil-T1N2bM0 stageIVA, chemo(Cisplatin), radiation(6660cGy), neck disection, no PEG. HPV negative. (Doc suspects posit)
3-9-09 last of 30 HBO treatments.
Joined: Sep 2014
Posts: 4
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Joined: Sep 2014
Posts: 4
I am 3 years out = I remember I was told to take zinc, but with no explanation.
So I still have the bottle I'd buy anybody got any I Dia if it would help at this point?

My page is sort of back but not really. And I'm still sensitive to spicy which I used to really love.

thanks,

Gregor

Joined: Jun 2014
Posts: 38
JGD99 Offline OP
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Joined: Jun 2014
Posts: 38
I have been doing 50 mg of zinc daily since a few weeks after treatment. I am now about 4 and a half months since end of rads & chemo, and am getting some taste back. Sweet flavors were almost all gone, and fruit has not been appealing, but I would say now , I'm "knocking at the back door" of sweet flavors. There not here yet, but much better


Head and neck cancer,
Squamous cell carcinoma,
HPV p16, Stage 3N (6/14) Occult origin;
58 year old male 35 rads & 2.5 doses Cisplatin chemo 7/10/14> 8/25/14
1.5 years clear of cancer, at this point.

"This, too is part of Life's Rich Pageant!"
Joined: Dec 2010
Posts: 5,260
"OCF Canuck"
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"OCF Canuck"
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Joined: Dec 2010
Posts: 5,260
You sound like me. I am four years out and it's much better but still not great. ;o) and yes I took Zinc and it did help... have a great day


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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