| Joined: May 2010 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: May 2010 Posts: 61 | I have fluoride trays, but haven't used them since early in treatment (5 yrs out).
My oncology dentist and support group members are recommending I return to using them.
Can anyone recommend what type of stuff to order to put in the tray?
Thanks!
Survivor. 55yr male. Dx 07/09 SqCCa Stage IV, Rt Tonsil, Lt&Rt Lymph Nodes. Aborted tonsilectomy 07/09. Chemo port 07/09. PEG 09/09. Chemo - 3xCisplatin 6xErbitux. RTx35. Tx ended 11/09. CAT scan (clean) 01/10. PET scan (clean) 02/10. Port & PEG removed 04/10.
| | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Ask the dentist. Some even keep stock to sell.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | [quote=PaulB]Below are the New 2014 NCCN Head and Neck Cancer Guidelines for "Principles of Dental Evaluation and Management." It can be seen in its entirety in version 2.2014 (only).
Goals of Pre-RT Dental/Oral Evaluation:
1. Patient education, both oral and written, regarding oral and dental complications of RT and need for compliance with preventive protocols.
* Effect on Salivary glands: > Dry mouth strategies . Increaee hydration . Salivary substitutes-eg, calcium phosphate containing solutions, gels containing Lysozyme. Lactoferrin and peroxide. . Alcohol Free Mouthwash . Salivary stimulation eg, Xylitol chewing gum, sorbitol/makic Acid Lozenges or Xylitol losengesb . Cholinergic agonists - Pilocerpine cevimeline
> Dental Carries Prevention . Diet Counceking . High potency topical fluoride-continue long term after therapy . Daily 1.1% NaF gel or SNF2, brush on or custom made dental trays or daily 1.1% dentifrice or fluoride varnish, three times a year, . Calcium Phosphate saliva rinse
> regular frequent Dental evaluation to detect dental disease . Effect on bone in irritated field
> Need for pre-RT Dental Evaluation and determine need for dental extractions. . If Yes, should be completed at least 2 weeks prior to the start of RT . Long term prognosis of teeth and patient motivation should be considered. . Need to contact dental oncology if any future extractions or surgery in irritated field.
> Effect on Macsticatory muscles . Prevention of Trismus . Maintain range of motion * tongue blades and gentle stretching * Custom mouth opening devises for rehabilitation of trismus and jaw motion
2. Examination and Assessment of Patient with Treatmnt Plan
. Complete oral and head and neck examination, inc,using radiographicsof all teeth . Existing Peridontal and dental conditions . Radiographicsof evidence of Peridontal and dental conditions > Oral hygiene >Past dental history > Patirnt motivation and compliance
. Treatmnt Plan > Eliminate potential sources of Infection > Extractions at least two weeks before start of RT > Treatmnt of active dental carries, Peridontal disease > Silicone guards to minimize back scatter, if patient has any metl restoration > Prescribe potent topical fluoride for daily use. Duration to be determined by periodic carries risk assessment over time. > Return visit for reevaluation and reinforcement of Preventive Protocol, during, last week of RT > Evaluation for oral condition and treat appropriately with agents.
Goals of Dental Management during cancer Treatment 1. Manage Xerostomia 2. Prevent Trismus of Macsticatory muscles 3. Evaluation for Oral Candidiosis and treat as clinically indicated
Goals of Dental Management Post Treatmnt 1. Manage Xerostomia 2. Prevent and Managemnt of Trismus 3. Prevent and dental carries 4. Prevent post radiation osteonecrosus 5. Prevent and Manage oral Candidiosis
Dental recall visit interval based on risk, at least once every 6 months, or more frequently for those with Xerostomia, or those with new carries, lesions following radiotherapy. [/quote]
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Mar 2015 Posts: 55 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Mar 2015 Posts: 55 | Not a recommendation, because I just had the trays made and got my prescription (from the dentist) filled at Walgreens. But what they gave me is called "Colgate PreviDent 5000ppm Booster Plus". The label say it is a 1.1% sodium fluoride prescription strength toothpaste.
Just before bed I am to brush my teeth and floss, then put a little of this into the trays and keep them in for 5 minutes or thereabouts. When taking them out don't rinse or gargle - just go to sleep and let the stuff do it's magic overnight.
Hope this helps.
Peter, age 62 at Dx 3/27/15 Dx T2N2aM0 Tonsilar P16+ G3 SCC 4/6/15 Full PET clear except for above 4/24/15 TOLM tonsillectomy/clear margins. Neck dissection 20 nodes (1 w/cancer & extracapsular extension) 5/28/15 PEG in 5/27 - 7/10/15 Daily Radiation to 66 units cumulative; Cisplatin weekly X 7 8/24/15 PEG out 9/24/15 Full body PET - N.E.D. 12/22/15 CT and physical exam. Continued clear. 3/11/16 Physical exam. Continued clear. 7/12/16 One year post-treatment! CT clear. 7/7/17 2 years post - still clear
| | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,409 | I also use Prevident every night and have for the last 6 years, and will continue to until my teeth choose to fall out.
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | I have not even had trays for 12 years in July. I use Prevident 5000 for sensitive teeth, 3 times daily. Only my dental oncologist knows.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Jan 2015 Posts: 15 Member | Member Joined: Jan 2015 Posts: 15 | My dental oncologist told me to buy the over the counter Colgate Gel-Kam. I started off with the berry flavor because they said Mint or Cinnamon would burn for the duration of radiation and the following couple months. I am now using Mint. I was told to wear my trays every night for 10 minutes for the REST of my life but I think I'll make my own rules and make it every other day within the next year or so.
Male, 23 year old�Dx 6/17/14 with SCC R Lateral tongue CT scan clear lymph nodes 6/20/14 HPV-, form-smoker, casual drinker Right Hemiglossectomy Surgery 6/24/14 (Not reccurrence but went to NCCC instead) Right neck diss., trach, radial free flap, right tongue diss. surg 8/11/14 PT1N2B..3 positive lymph nodes out of 13 Extranodal extension present 9-15-14 IMRT (35x) and Cisplatin (2x) begun 10-21-14 peg in. 11-4-14 IMRT rx comp. 1-9-15 peg out 3-27-15 Recurrent tumor in lymph node, Left neck diss. 10-29-15 passed away
| | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Brandon, I would seriously reconsider your decision to ignore what your dentist is saying. The flouride in your toothpaste is not strong enough and it is not the flouride you want to use to try and save your life. The expense and potentially deadly consequence of your decision doesn't make sense. Also, you should check with your cancer treatment center to see if they have a family practice clinic with ACE (After Cancer Experience) or similar certified physicians. They adjust lifetime screenings, as an example, for younger people that have gone through toxic treatments like we do.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,409 | Brandon, I second Uptown's advice. For me having to do 5 minutes every night with the trays and real fluoride stuff is the smallest price to pay for keeping my teeth!
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | |
Forums23 Topics18,235 Posts197,106 Members13,293 | Most Online1,788 Jan 23rd, 2025 | | | |