| | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) |  "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Oh... and getting through it a second time can be done very successfully. Donna... (canadian) had one come back either 2 or 3 years out. She passed the 8 and 5 year mark last year some time.
Two individual tumors as well... not a recurrence.
Hugs.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Dec 2011 Posts: 18 Member | | OP Member
Joined: Dec 2011 Posts: 18 | Thank you all. I am seeing my doctor in the morning to ask all the questions that ya'll recommended. I am very worried because I have been having a sore throat the last couple of days and I can't help but think that the cancer is spreading to my throat. I also have been experiencing more pain than usual and that's not a good thing. They have given me meds so that the pain is bearable; and that's a good thing. I'm trying to keep thinking positive thoughts. Please keep praying for me that this is just a little bump in the road. I'll let you know what the doctors are saying now about my course of action. Com'on May 1st. I'm ready to kick this thing called Cancer in the butt. Thank ya'll for being here for me.
Age 55 12/2011 SCC Floor of Mouth,
Stage IV, Partial Glossectomy,
Neck Lymph nodes removed
6 weeks radiation, Peg tube
2/15 recurrence, surgery set for June 9th.
"Praying for the best"
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 |
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Apr 2015 Posts: 91 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2015 Posts: 91 | What happened at your appt? I hope it all went well. Denise
Biopsy tongue 3/24/15
Diagnosis SCC tongue/floor of mouth
Partial glossectomy, resection and right neck dissection done
4/22/15
T2aN0M0
05/01/2015-no further treatment indicated at this time,
monthly check ups for two years
| | | | | Joined: Dec 2011 Posts: 18 Member | | OP Member
Joined: Dec 2011 Posts: 18 | My doctor just told me about what kind of surgery to expect. It was basically about the same as the lst one. He didn't see anything about the sore throat. The CT scan didn't show that it had spread but that was taken about 2 months ago. I will be in the hospital for about 10 days. I will have a trach and some skin graphs. They are doing reconstruction this time around. I don't have much tongue left so I'm sure I won't have any when the get through. Denise, I hope your surgery goes well. I had the glossectomy and neck dissection too. My prayers are with you. Thank you all for your continued prayers. I will keep everyone posted when I find out anything new.
Age 55 12/2011 SCC Floor of Mouth,
Stage IV, Partial Glossectomy,
Neck Lymph nodes removed
6 weeks radiation, Peg tube
2/15 recurrence, surgery set for June 9th.
"Praying for the best"
| | | | | Joined: Nov 2009 Posts: 644 Likes: 1 "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) | | "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts)
Joined: Nov 2009 Posts: 644 Likes: 1 | I'm sure he would have mentioned your throat if it was something untoward. Sounds like full-on surgery with trache and grafts. Your tongue will probably be built up with a flap so, yes, there will still be a tongue:)
Wishing you all the best for the surgery.
1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Hugs... You will get through this okay.
many blessings to you.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Dec 2011 Posts: 18 Member | | OP Member
Joined: Dec 2011 Posts: 18 | Well, my surgery date is coming up rapidly. I don't know if I am happy to finally get this over with or sad because of the unknown. I just know that I am tired of being in pain and taking meds all the time. They make me where I just don't want to do anything but sleep. I am trying to keep an open mind and do activities so that I'm not dwelling on this. Thank goodness that I have my sister close to me now. She has been a godsend. After this is over, I'm gonna owe her big. Hopefully, with the reconstruction this time, I will be able to see a speech therapist to help me get back on tract sooner. (Can't keep me down for long).
Age 55 12/2011 SCC Floor of Mouth,
Stage IV, Partial Glossectomy,
Neck Lymph nodes removed
6 weeks radiation, Peg tube
2/15 recurrence, surgery set for June 9th.
"Praying for the best"
| | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Sherry, hang in there. You just have 3 more days. As requested, I have been praying for you. The things I have asked for are peace for you, wisdom and guidance for the medical team to expertly and swiftly rid your body of cancer, for a smooth surgery and quick healing.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Good luck with everything. Sometimes the pain is referred pain. Although 2 months is a long time between scan and surgery. I am not sure if your dr. is the same but my does a surgery where he can see the cancer in real time while he's cutting (no need for a up to date CT). Working off a 2 month old scan is like flying with out updated flight traffic information. If it were a week old that would be okay... Is he sending you for a second scan?
Anyway hugs and best of luck.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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