| Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Glad he seems to be feeling up... hopefully it will continue... hugs.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Mar 2015 Posts: 71 "OCF across the pond" Supporting Member (50+ posts) | OP "OCF across the pond" Supporting Member (50+ posts) Joined: Mar 2015 Posts: 71 | Thankyou tammy x yes he gets seen by a doctor every Wednesday now so I will go with him x I've been reading swallowing can get worse with radiation so that's panicked me a bit :(( x I'll ring his McMillan nurse tomorro and ask some questions also I'm hoping radiation doesn't cause to many issues as he's really doing well at the moment x one thing I've noticed is he's a bit unsteady on his feet seems a bit off balance just since the operation x thankyou Cheryll :)) xx
Father 60 years old Diagnoised oc jan 15 Peg fitted 27/2/15 Full tongue glossectomy reconstruc surge , Lymph nodes and glands out 5/3/15 Rt 14/5/2015
| | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2011 Posts: 945 | Hi, Delly - good luck to your Dad with the radiation. My husbard did not mind the radiation mask because he knew it kept in the correct position. He still has it in the basement and it creeps me out every time I go down there! Maria
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | Joined: Mar 2015 Posts: 71 "OCF across the pond" Supporting Member (50+ posts) | OP "OCF across the pond" Supporting Member (50+ posts) Joined: Mar 2015 Posts: 71 | Thankyou Maria he struggling because he can't block his throat so the saliva goes back and chokes him so he has to keep getting out of mask and breathing he feels bit down today cos there's six week of this x but everytime he stops them he has to start again x he says it's the positioning and the scan cos it to long the radiation is ok but he can't lie flat for that long  xx
Father 60 years old Diagnoised oc jan 15 Peg fitted 27/2/15 Full tongue glossectomy reconstruc surge , Lymph nodes and glands out 5/3/15 Rt 14/5/2015
| | | | Joined: Nov 2009 Posts: 644 Likes: 1 "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) | "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) Joined: Nov 2009 Posts: 644 Likes: 1 | That sounds awful, Delly. Surely there's some sort of technique they can use to help him. I know what he means by the scan. It's quite a lot longer when they do that. I hope everyone can make a way for him to be more comfortable when he has the treatment. Once everything is up and running times goes quickly. Crossing my fingers for you:) Maureen
1996, ovarian cancer surgery + cisplatin and taxol. September, 2007, SCC of left lateral tongue. Excision. October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT. February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
| | | | Joined: Mar 2015 Posts: 71 "OCF across the pond" Supporting Member (50+ posts) | OP "OCF across the pond" Supporting Member (50+ posts) Joined: Mar 2015 Posts: 71 | Hi Maureen there nothing they can do except stop get him out let him out and then start again  he really panics he can't block his saliva from going down so it ends up choking him hopefully it will dry up soon and then won't be a problem lying flat x three down 27 to go xx he a feeling very tired but think that's all the trips to hospital it takes it out of him xx he's speaking a little bit now only now and again but that's good x
Father 60 years old Diagnoised oc jan 15 Peg fitted 27/2/15 Full tongue glossectomy reconstruc surge , Lymph nodes and glands out 5/3/15 Rt 14/5/2015
| | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2011 Posts: 945 | Hi, Delly Your poor Dad - that sounds really miserable. The only thing I could think of would be a suction tube, but I don't think that woud be feasible by the radiation machine. My guess is that your Dad is going to hit his stride with this in a week or so and be better able to cope emotionally at least. Best wishes and thinking of you both! Maria
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | Joined: Mar 2015 Posts: 71 "OCF across the pond" Supporting Member (50+ posts) | OP "OCF across the pond" Supporting Member (50+ posts) Joined: Mar 2015 Posts: 71 | Hi Maria the mask to tight to get any sort of tube in only got his nostrils on show bless him xx he said he only stopped once Friday he is trying different techniques x he's feeling very tired already is this normal so soon he's only had 3 lots so far xx
Father 60 years old Diagnoised oc jan 15 Peg fitted 27/2/15 Full tongue glossectomy reconstruc surge , Lymph nodes and glands out 5/3/15 Rt 14/5/2015
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Many patients take anxiety meds before they go for their radiation treatment. Talk to his doctor right away about getting something to help him get thru treatments. It really is a horrible feeling being bolted down to that tiny table while you are left alone in that room with giant machines moving all around you.
Fatigue will unfortunately get progressively worse. This is where intake plays a huge role. Every single day he should be taking in at the very least 2500 calories and 48-64 oz of water. If he can push and do more than will only help him to feel better and get thru this easier. Radiation treatments for OC patients are brutal to say the least. Take advantage of any tools to help get thru it easier. Ask the doc for an open prescription for extra hydration in the chemo lab. This will make a big difference in how your father feels too. If you can get him to get this done say 3 times a week it will be a big help in boosting how he feels.
Hang in there, we will get you both thru this. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Mar 2015 Posts: 71 "OCF across the pond" Supporting Member (50+ posts) | OP "OCF across the pond" Supporting Member (50+ posts) Joined: Mar 2015 Posts: 71 | Hi christene thanks for reply what's hydration in the chemo lab ? X How many weeks after radiation fiinishes do you think my dad will start to feel better does it take a long time. Xx
Father 60 years old Diagnoised oc jan 15 Peg fitted 27/2/15 Full tongue glossectomy reconstruc surge , Lymph nodes and glands out 5/3/15 Rt 14/5/2015
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